I've had GCA for 3 years now and my prednisolone dose is down to 5mg. I had thought that by now I would be feeling a lot closer to "normal" than I actually am.
I still feel extreme exhaustion, like being completely drained of energy, not really tired. Also as if I have permanent flu. I have very bad pain in both my shoulders and arms, knees and thighs which the rheumatologist thinks is probably fibromyalgia rather than PMR (normal inflammatory markers). I also have pred induced diabetes (and take insulin, gliclazide and metformin).
What I'd like to know is this normal for a lot of people or should I be thinking I have something else? I'm taking a lot of medication at the moment so I'm confused as to what could be causing these symptoms - Prednisolone, Alendronic Acid, Losartan, Atenolol, Amlodipine, insulin, gliclazide, metformin, omeprazole, fluoxetine and vit D/calcium.