Haven't written for a while. I started to reduce my pred and got down to 4/5 by Christmas. Started to eat healthy and lost weight too, I was feeling good. I didn't want to have to start taking any more medication to get off pred .My Rheumatologist was very pleased with my progress, but said to stop reducing till I had my operation. I had my gallbladder removed at the end January (polyp) which was very successful, day surgery, home that evening and didn't even need painkillers. I started to reduce again Feb/March but I am struggling with hip/back pain and that horrible fatigue has returned. Still on 4/5 pred but suffering and feeling a bit crap again. Thinking should I go up ? or stick it out a bit longer to see ?
Update : Haven't written for a while. I started to... - PMRGCAuk
Update
Hi Jules,
Glad to hear your op was successful, but no doubt it took its toll.
Would hazard a guess that your fatigue could be related to your adrenal glands as much as your PMR, so in that case it might just be a matter of riding it out for the time being.
However, if you think the pains are PMR related then it might be wise to increase for a little while to try and get a grip in case the inflammation has increased following the op. Might be worthwhile getting a blood test to confirm.
If you're not sure, can you speak to someone in the Rheumy Dept for advice?
I agree with DorsetLady. Your body has been through a lot of stress and I would be inclined to try a mg or two to settle the reactive inflammation, wait a while then before resuming the taper.
It's all a bit snakes and ladders, you're doing great then life throws a spanner into the works. You'll get there though.
I agree with the others!
Thank you for all your replies Ladies xx