I was diagnosed with pmr end of November - stared on 20 mg pred. Had almost immediate effect. Reduced to 15mg after 4 weeks and to 12.5 by Feb . No real issues with this. Reduced to 10 mg 3 weeks ago in time for my Rheumatologist appointment on March 13th. Hospital rang on the day to cancel and sent me my next appointment for September!!
I have stuck with 10 despite having all horrid pains back- i could not move last weekend. Put myself back onto 12.5mg for a few days and today have reduced to 10mg.
Am seeing GP next week - first appointment I could get- but sadly he doesn't understand this condition- who does?
Can anyone advise on what level of reduction I should be looking at between now and September? Is it 1mg monthly or 0.5 mg monthly? Is it all about how my system copes?
I feel I need to know more before the GP visit.
Thanks in advance for your answers- I read this site almost daily and everyone is so kind and knowledgable