Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for December 2016

Advice on reducing steroids

I am new here and am 18 months into a steroid reduction. Originally I was on 30 mg and have worked my way down to 7.5 mg since June. This time I have not been...

I am new here and am 18 months into a steroid reduction. Originally I was on 30...

Sylsam

•8 years ago

12 Replies

Xmas good wishes

Happy Xmas to all. Just to let you know I'm still fine after 2 years off the pred. I will never forget the PMR pain and the other ailments that go with it. I...

Happy Xmas to all. Just to let you know I'm still fine after 2 years off the pre...

suzieh

•8 years ago

16 Replies

BACK BENDS

Was doing the dead slow wean got down to 17 mg doing well, bent over in the shower and put my back out now walking hunched over cannot stand up straight, went...

Was doing the dead slow wean got down to 17 mg doing well, bent over in the show...

jevuki

•8 years ago

7 Replies

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A claim to fame, I issued first blue badge in Suffolk

When I was employed I worked for a County Council and one of my roles was to issue parking badges after the application form had been scrutinised. The original...

When I was employed I worked for a County Council and one of my roles was to iss...

GCA1947

•8 years ago

8 Replies

I've been here a while and wish all a Happy Christmas and New Year

I've been here a while but don't post much. I really feel for the poor souls who suffer from PMR as well as GCA, because I've only had GCA for three years and...

I've been here a while but don't post much. I really feel for the poor souls who...

GCA1947

•8 years ago

5 Replies

Yo-yoing on Prednisolone...

Hi, and many thanks to all for the very helpful and informative information on this site. I am yet another newbie, trying to get to grips with understanding...

Hi, and many thanks to all for the very helpful and informative information on t...

Patience_1

•8 years ago

15 Replies

Picture This

Me using walking stick had a fall last week Daughter on crutches RA playing up Granddaughter on crutches and in cast Achilles tendon All walking down street...

Me using walking stick had a fall last week Daughter on crutches RA playing up G...

olive2709

•8 years ago

4 Replies

Carpal Tunnel Syndrome, where does it fit?

I recall reading in Kate Gilbert's book something about CP Syndrome and at the time couldn't work out what (or if) there is some connection to PMR. I had CPS...

I recall reading in Kate Gilbert's book something about CP Syndrome and at the t...

IdasMum

•8 years ago

3 Replies

A cure for the munchies

Good morning I have been laid low with a cold that has knocked me for six and due to see the Rheumy today. I cannot stop obsessing about food. Taking 40mg...

Good morning I have been laid low with a cold that has knocked me for six and d...

Elaine-W

•8 years ago

13 Replies

Riddles of life

I'm in my late 60's and I still have so many unanswered questions! I never found out who let the dogs out or if Annie was OK? and who was Annie's Daddy? I...

I'm in my late 60's and I still have so many unanswered questions! I never found...

violetsnowdrop

•8 years ago

6 Replies

Merry Christmas

I hope you are able to view this - only link I can find: https://www.facebook.com/maritimebhangra/videos/1348646968486908/

I hope you are able to view this - only link I can find: https://www.facebook.co...

HeronNS

•8 years ago

13 Replies

Second day

I am normally on 30mg prednisone daily. yesterday I started 29mg. This is my second day. hips hurt, left knee, palms of hands, all over weak. Is this normal in...

I am normally on 30mg prednisone daily. yesterday I started 29mg. This is my sec...

nancyannehanson

•8 years ago

3 Replies

Is it just me .......

I,m down to 7mg of Prednisone now, for the last two weeks I have been having increasing stiffness and pain which is worse first thing in the morning , in fact...

I,m down to 7mg of Prednisone now, for the last two weeks I have been having inc...

Hidden

•8 years ago

13 Replies

Prednisolone Reduction problems.

Hi all, another newbie here..!! I got diagnosed with PMR end of July this year and was prescibed 15mg, which like a lot of other people, found it worked...

Hi all, another newbie here..!! I got diagnosed with PMR end of July this year a...

Amstel

•8 years ago

7 Replies

Shingles

Is anyone planning to have the new shingles jab for the +70s? As I've just reached that magical age I booked the jab for tomorrow at my local surgery. Quite by...

Is anyone planning to have the new shingles jab for the +70s? As I've just reach...

Roy46

•8 years ago

4 Replies

Thanks for this Site!

Hello Everyone:- Just wanted to say a big thankyou to everyone who's contributed on this site over course of this year since I've joined the 'club nobody...

Hello Everyone:- Just wanted to say a big thankyou to everyone who's contri...

Rokerman

•8 years ago

14 Replies

Brain fog

How common is brain fog with pmr ? Mine is so bad doc sent me for a ct scan suspecting secondary breast cancer of the brain which was clear .have low ferretin...

How common is brain fog with pmr ? Mine is so bad doc sent me for a ct scan susp...

stayingstrong4me

•8 years ago

11 Replies

Sleep pattern worse on reducing doses than it was on higher doses

I have been reducing from 10mg to 9.5mg on DSNS method since 1st December. Diagnosed PMR January 2016 and prescribed 20mg prednisolone then. I used to have...

I have been reducing from 10mg to 9.5mg on DSNS method since 1st December. Diagn...

Mary63

•8 years ago

19 Replies

Locked out of the site

Hooray! One of my totally harmless posts was reported as scam so I have been locked out for over a week. On Friday, my Rheumatologist who I have had since...

Hooray! One of my totally harmless posts was reported as scam so I have been loc...

EdithWales

•8 years ago

6 Replies

High Calcium level

Has anyone else been told their Calcium level is high? Mine is 2.7 so have been told to stop taking Calcium and Vit D tablets. I am still taking Vit K2 as I...

Has anyone else been told their Calcium level is high? Mine is 2.7 so have been ...

Marcy47

•8 years ago

13 Replies

Can the inflammation of PMR cause hair loss?

I'm 52 and before I started Prednisone I noticed hair loss near my forehead. Once the inflammation from PMR is under control with steroids will my hair come...

I'm 52 and before I started Prednisone I noticed hair loss near my forehead. Onc...

Marie1479

•8 years ago

28 Replies

What does "symptom control" mean?

Hello everyone. I'm a 70 year old man trying to get off the Pred for 2 1/2 years. I have PMR and have tapered down from 20 mg/day to 4 mg/day. Although I...

Hello everyone. I'm a 70 year old man trying to get off the Pred for 2 1/2 yea...

ThomasKirk

•8 years ago

6 Replies

Really sorry .....

... to ask a question that's probably been asked a zillion times, but just how much Vitamin D should I be taking. For many years (way before PMR) I've taken...

... to ask a question that's probably been asked a zillion times, but just how m...

Therealsue

•8 years ago

7 Replies

Chicken Pox

Hi, I am a significant part of my daughter's childcare arrangements and often look after my 2 year old grandson. My daughter has just phoned in some distress...

Hi, I am a significant part of my daughter's childcare arrangements and often lo...

SheffieldJane

•8 years ago

12 Replies

Omeprazole worries

Hello all! Like many others, I have been on Omeprazole since diagnosis of PMR and starting Prednisolone. I'm not happy about taking it, as I already have...

Hello all! Like many others, I have been on Omeprazole since diagnosis of PMR a...

Mrsd12f

•8 years ago

2 Replies

What to do next

Good morning . Reduced my pred yesterday after a totally pain free three weeks . Down from 12 1/2 to 10. Woke up this morning with painful shoulders again ....

Good morning . Reduced my pred yesterday after a totally pain free three weeks ....

Manchesterlady

•8 years ago

5 Replies

Insomnia

Any advice on sleep. I take zopiclone 3.75 at 22.00 bed at 22.30 then awake & loo visits about 01.30, 01.45 (take prednisolone 30mg) then it's 03.30 & 05.40...

Any advice on sleep. I take zopiclone 3.75 at 22.00 bed at 22.30 then awake & lo...

Glyngin

•8 years ago

23 Replies

Advice please

I apologise for being a needy newbie in advance of my question. I have been unwell since 19/11/16 when I was put on pred 40mg for GCA symptoms. I see the...

I apologise for being a needy newbie in advance of my question. I have been unwe...

Elaine-W

•8 years ago

15 Replies

GCA and sore mouth

The back of my mouth is very sore - all along before you get to the throat. I have had some mouth soreness before. It is especially when I wake up. I have...

The back of my mouth is very sore - all along before you get to the throat. I ha...

christine2715

•8 years ago

8 Replies

Post holiday blues?

Just returned from a two week all include in Lanzarote. Had a bit of an up and down time of, which I believe is part due to the strange steroid regime my...

Just returned from a two week all include in Lanzarote. Had a bit of an up and d...

Griggser

•8 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2016

Advice on reducing steroids

Xmas good wishes

BACK BENDS

A claim to fame, I issued first blue badge in Suffolk

I've been here a while and wish all a Happy Christmas and New Year

Yo-yoing on Prednisolone...

Picture This

Carpal Tunnel Syndrome, where does it fit?

A cure for the munchies

Riddles of life

Merry Christmas

Second day

Is it just me .......

Prednisolone Reduction problems.

Shingles

Thanks for this Site!

Brain fog

Sleep pattern worse on reducing doses than it was on higher doses

Locked out of the site

High Calcium level

Can the inflammation of PMR cause hair loss?

What does "symptom control" mean?

Really sorry .....

Chicken Pox

Omeprazole worries

What to do next

Insomnia

Advice please

GCA and sore mouth

Post holiday blues?

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