Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,030 members • 39,701 posts

All posts for December 2016

How does it feel when in remission

Hi. I think I am close to being off the steroids... and 'touch wood' have no painful symptoms. I need to get moving more but I still suffer from extreme...

Hi. I think I am close to being off the steroids... and 'touch wood' have no pai...

•8 years ago

Continuing reduction at time of hospital treatment

On December 17th I am going in as a day patient to have surgery under a GA to have a sinus cleared of a chronic infection. I am in the middle of reducing from...

On December 17th I am going in as a day patient to have surgery under a GA to ha...

•8 years ago

Alendronic acid warning

After severe pain in my left thigh.for many years a new doctor at my surgery sent me to the orthopaedic clinic where it was discovered I was walking on a...

After severe pain in my left thigh.for many years a new doctor at my surgery sen...

•8 years ago

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When does pred weight loss kick in?

Hello! Currently on 9mg pred after a start of 15mg in August and coping well. However roughly at what dosage does the steroid weight loss kick in? My daughter...

Hello! Currently on 9mg pred after a start of 15mg in August and coping well. H...

•8 years ago

How do we know when PMR has gone?

I've had PMR for nearly 2 years now - although only diagnosed for 18 months. I have been reducing my prednisolone gradually from 20 mg to 7.5mg. I missed a...

I've had PMR for nearly 2 years now - although only diagnosed for 18 months. I h...

•8 years ago

2 Event PMR

December 3rd twenty 16 I woke up and it seemed to be a rough day it was 8 a.m. in the morning and I felt the sickness around my chest or I could just barely...

December 3rd twenty 16 I woke up and it seemed to be a rough day it was 8 a.m. i...

nancyannehanson

•8 years ago

PMR without Prednisone

Was RX'd low dose prednisone in May because of knee swelling from surgery (fell on ice) in Feb. Felt awful on steroids. Flu-like, joint pain, ect. Tried to...

Was RX'd low dose prednisone in May because of knee swelling from surgery (fell ...

•8 years ago

Splitting dose of pred 40mg

Hello is anyone on 40mg of prednisone and splits the dose to help with side effects. I feel very agitated, stressed, mood swings, tremors and then fatigued....

Hello is anyone on 40mg of prednisone and splits the dose to help with side eff...

•8 years ago

Blood sugar level, any idea?

Had GCA for 5 months. Just had a call to book an appointment with GP who wants to discuss raised sugar level from an earlier blood test. Any idea what this...

Had GCA for 5 months. Just had a call to book an appointment with GP who wants t...

•8 years ago

Pred and diazapam

I have , slightly against my better judgement, arranged to visit my daughter in Norway for Christmas and have been prescribed diazepam to counteract my...

I have , slightly against my better judgement, arranged to visit my daughter in ...

•8 years ago

5 months into PMR

My husband and I have lived in Spain before we bought our bungalow here in Cambs. I had the onset of PMR in July without realising what the intense pains were....

My husband and I have lived in Spain before we bought our bungalow here in Cambs...

•8 years ago

Thanks for sharing your knowledge and experience everyone. I read this site frequently and am still learning,

I had not realised that PPIs exacerbated Osteoporosis. I was doing a very slow prednisolone reduction but ophthalmologist says that I have steroid related...

I had not realised that PPIs exacerbated Osteoporosis. I was doing a very slow ...

•8 years ago

Infections

Can urine infections happen with use of steroids as anyone experienced this all tests done for other things but everything seems ok thanks

Can urine infections happen with use of steroids as anyone experienced this all...

•8 years ago

Omeprozole & Prednisolone

How long should I wait to take my pred after I've taken 20 mg of Omeprozole? I take a tablet for high blood pressure & Omeprozole when I get up in the morning...

How long should I wait to take my pred after I've taken 20 mg of Omeprozole? I ...

•8 years ago

Newbie reduction advice please

Good morning I have a question I hope someone can help me with. I have read on this group about the importance of reducing pried slowly. I first got ill two...

Good morning I have a question I hope someone can help me with. I have read on ...

•8 years ago

Using ppi

Goodmorning everybody, may I ask a second question? Since it is like living in a parallel world, being diagnosed with pmr and you all know what I means. My...

Goodmorning everybody, may I ask a second question? Since it is like living in a...

•8 years ago

Recent diagnosis

Hi Was diagnosed with PMR & GCA in November 2016.Just thought it was flu but after 4 weeks getting weaker & weaker I went to doctors. Diagnosed immediately &...

Hi Was diagnosed with PMR & GCA in November 2016.Just thought it was flu but aft...

•8 years ago

antibiotics and prednisolone

I have had a cold and productive cough for 5 weeks and it seems to be getting worse. Feel really awful. Does anyone know if it's OK to see my doctor to ask for...

I have had a cold and productive cough for 5 weeks and it seems to be getting wo...

•8 years ago

Handouts for Drs appt

Good morning I go to see my rheumy for the second time on Monday. I am looking for any links to information that might be good to take him. Is there any place...

Good morning I go to see my rheumy for the second time on Monday. I am looking f...

•8 years ago

I don't know what to do?

I'm on day 23 of Leflunomide and although I have no pain now I am starting to notice a few things that concern me. I went to the Christmas party that I had...

I'm on day 23 of Leflunomide and although I have no pain now I am starting to no...

•8 years ago

Salisbury PMRGCAUK meet up

For those of you diagnosed with either PMR or GCA (or both) and living in South/Central uk this is to let you know that I am the pmrgcauk facillitator for a...

For those of you diagnosed with either PMR or GCA (or both) and living in South/...

•8 years ago

Need description of "flash of light" re vision

I was diagnosed as having PMR with possible GCA in March of 2015. An astute ER doctor in a small town in Minnesota heard my symptoms of two weeks, did blood...

I was diagnosed as having PMR with possible GCA in March of 2015. An astute ER ...

•8 years ago

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