Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for October 2016

Depression effectively treated with more steroids

PMRpro, As I am sure you will remember, I had significant difficulty with trembling over the past few days. On Sunday, I trembled for an hour or so and it...

PMRpro, As I am sure you will remember, I had significant difficulty with trembl...

Admiral06

•8 years ago

8 Replies

Alternative Therapy - Canadian residents - Nature of Things broadcast

If anyone is able to pick up CBC programs Nature of Things tomorrow night is, among other things, discussing Bioflex light therapy. I've been getting this to...

If anyone is able to pick up CBC programs Nature of Things tomorrow night is, am...

HeronNS

•8 years ago

4 Replies

Is PMRGCA invisible?

I've had this condition since May and I feel that family doesn't give it its due. The high doses of prednisone,( 60-40 mgs three times so far, because of...

I've had this condition since May and I feel that family doesn't give it its due...

Mgeorge

•8 years ago

26 Replies

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Pain in coccyx and lower back

Hello friends! I have PMR and GCA. For the past several weeks, I have been having severe pain in the coccyx and lower back. I have had X-rays which showed some...

Hello friends! I have PMR and GCA. For the past several weeks, I have been havin...

Joyful13

•8 years ago

4 Replies

I am new to this forum and new to PMR (diagnosed 10/24/16). I have begun to research PMR and have a question.

I know the symptoms of PMR are usually worse at night and in the morning - but does anyone know why? I have been unable to find any information regarding the...

I know the symptoms of PMR are usually worse at night and in the morning - but d...

Dinty123

•8 years ago

72 Replies

Any advice on bisphosphonates such as Fosamax?

I'm new to this forum and I'd like to thank everyone for sharing your experiences. I have learned a lot from you, more than from my doctors. I've followed your...

I'm new to this forum and I'd like to thank everyone for sharing your experience...

kulina

•8 years ago

33 Replies

Blue badge parking

Cannot believe I am so excited at being sent a Blue Badge. Will be a great help as parking in Lewes is awful and I am still really ill for 70% of the time....

Cannot believe I am so excited at being sent a Blue Badge. Will be a great help...

christine2715

•8 years ago

6 Replies

Upcoming PIP review

Hi everyone, Following multiple tests to establish the cause of my constant headaches,(involving Rheumatologist; Opthalmology and ENT) the following has been...

Hi everyone, Following multiple tests to establish the cause of my constant head...

violetsnowdrop

•8 years ago

13 Replies

Swollen cheek

Hi Everyone Just wondered if anyone has had this whilst on Pred(I'm on 9mg for last two months) My right cheek is slightly swollen and I had what felt like...

Hi Everyone Just wondered if anyone has had this whilst on Pred(I'm on 9mg for l...

Fran2young

•8 years ago

8 Replies

Injection Site Pain From Depo-Medrol

As many readers know, I am receiving 80 mg injections of depo-medrol each week for PMR. Depo-medrol comes in three strengths: 80 mg per ml, 40 mg per ml and...

As many readers know, I am receiving 80 mg injections of depo-medrol each week f...

Admiral06

•8 years ago

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Stem cells for vision loss - someday ??

In the back of my mind, I have a little hope that stem cells could repair my left eye. Has anybody here done any research on this?

In the back of my mind, I have a little hope that stem cells could repair my lef...

missmylefteye

•8 years ago

20 Replies

weird sensation in head and face

Hi, has anyone experienced a strange feeling in their head and face, its as though ripples of water are running from the inside of my skull to my neck, a...

Hi, has anyone experienced a strange feeling in their head and face, its as thou...

Hidden

•8 years ago

7 Replies

manchesterlady

hi everyone,my doctor has put me om 30mg pred today .I was in so much pain and could hardly move.have to go back to see him after two days to reduce the dose....

hi everyone,my doctor has put me om 30mg pred today .I was in so much pain and c...

Manchesterlady

•8 years ago

4 Replies

Steroids upped again!

Hi Guys Another feeling sorry for myself post again I'm afraid. I had a follow-up appointment with my GP last night after having my prednisolone upped 2...

Hi Guys Another feeling sorry for myself post again I'm afraid. I had a follo...

birthday1

•8 years ago

11 Replies

Trembling as a side effect of steroids

Soon after receiving depo-medrol injections for PMR, I began to suffer from a list of side effects that included trembling. Some days it was mild and didn’t...

Soon after receiving depo-medrol injections for PMR, I began to suffer from a li...

Admiral06

•8 years ago

20 Replies

Iridotomy while on Pred.

Hi everbody I got high eye pressure from 2years of Predisone . My specialist wants me to undergo a Laser OP for narrow angle to lower the Glaucoma threat by...

Hi everbody I got high eye pressure from 2years of Predisone . My specialist wan...

Orchid47

•8 years ago

12 Replies

Steroid induced Pychosis

Prednisone reduced from 60mg to 15mg Whilst in hospital!! Pharmacists disagreed with the drop! Consultant had the final word.. I have been suffering with...

Prednisone reduced from 60mg to 15mg Whilst in hospital!! Pharmacists disagreed ...

Isis

•8 years ago

4 Replies

Garlic properties

I just read this description "Garlic really is good for you! It can reduce inflammation, boost the immune system and improve cardiovascular health." I am...

I just read this description "Garlic really is good for you! It can reduce infla...

Parijm

•8 years ago

12 Replies

Abscess tooth

Hi everyone, I have to go get an abscess tooth pulled and was wondering if I need to tell the dentist that I am on 30mg of prednisone. Thanks in advance. 😊

Hi everyone, I have to go get an abscess tooth pulled and was wondering if I nee...

misaryk

•8 years ago

23 Replies

Good rheumies around Norwich UK

Can anyone recommend a good PMR rheumy in or in easy reach of Norwich? Obviously the N&N is the first choice - but who is good there?

Can anyone recommend a good PMR rheumy in or in easy reach of Norwich? Obviously...

PMRpro

Ambassador•8 years ago

6 Replies

Can having a cold cause a flare

Hi I am on 5mg of pred and 10mg of Leflunomide a day, since starting Leflunomide 3mths ago I can't believe the difference in the swelling of my...

Hi I am on 5mg of pred and 10mg of Leflunomide a day, since starting Leflunomide...

valrene

•8 years ago

3 Replies

GCA?

Hello I am a 23 year old female who for the past 3months has been suffering from random aches and pains. It started off with a terrible headache which the led...

Hello I am a 23 year old female who for the past 3months has been suffering from...

chelsealouise33x

•8 years ago

15 Replies

dodgy knees and ankles

Could any of you dear people let me know if you've had problems with knee and ankle ligaments/tendons from being on steroids for a long time please. I have...

Could any of you dear people let me know if you've had problems with knee and an...

mamma1027

•8 years ago

8 Replies

High blood pressure

Hi. My blood pressure got very high prior to GCA diagnosis then settled to slightly high after a few months on Prednisolone. Was given a bp med to help....

Hi. My blood pressure got very high prior to GCA diagnosis then settled to sligh...

granny-b

•8 years ago

9 Replies

Gluten free and Magnesium

Pleased to say our whirlwind tour of southern UK is over. It was lovely to see people and join in celebrating news of a new pregnancy (4th grandchild nr...

Pleased to say our whirlwind tour of southern UK is over. It was lovely to see ...

IdasMum

•8 years ago

5 Replies

What should the PMR pain/stiffness goal be while tapering prednisone?

Hi all....wonderful to have all of you to talk to and read about. So, here is my comment/question. I am currently at 10 mg pred...experimenting with 5 mg...

Hi all....wonderful to have all of you to talk to and read about. So, here is ...

Hidden

•8 years ago

27 Replies

Weather and PMR

Having a bit of a flare up last few days and wondering if cold and damp weather can cause it. Trying to figure out if it's something I ate, the weather or who...

Having a bit of a flare up last few days and wondering if cold and damp weather ...

Ligtocicar

•8 years ago

13 Replies

Beta Blocker for the Side Effects of Methylprednisolone

I have been receiving injections of depo-medrol (metylprednisolone) for PMR since August 4, 2016. By early October, I had developed the following side...

I have been receiving injections of depo-medrol (metylprednisolone) for PMR sin...

Admiral06

•8 years ago

3 Replies

GCA and remission

How do you know when GCA has gone into remission. It seems to me that if some people need steroids for very long periods because of adrenal failure how will...

How do you know when GCA has gone into remission. It seems to me that if some p...

christine2715

•8 years ago

8 Replies

GCA and Myasthenia Gravis

I would like to connect with anyone who has both GCA and Myasthenia Gravis. I am having trouble separating out the symptoms of the two diseases and I'd like to...

I would like to connect with anyone who has both GCA and Myasthenia Gravis. I am...

AmyLW

•8 years ago

2 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2016

Depression effectively treated with more steroids

Alternative Therapy - Canadian residents - Nature of Things broadcast

Is PMRGCA invisible?

Pain in coccyx and lower back

I am new to this forum and new to PMR (diagnosed 10/24/16). I have begun to research PMR and have a question.

Any advice on bisphosphonates such as Fosamax?

Blue badge parking

Upcoming PIP review

Swollen cheek

Injection Site Pain From Depo-Medrol

Stem cells for vision loss - someday ??

weird sensation in head and face

manchesterlady

Steroids upped again!

Trembling as a side effect of steroids

Iridotomy while on Pred.

Steroid induced Pychosis

Garlic properties

Abscess tooth

Good rheumies around Norwich UK

Can having a cold cause a flare

GCA?

dodgy knees and ankles

High blood pressure

Gluten free and Magnesium

What should the PMR pain/stiffness goal be while tapering prednisone?

Weather and PMR

Beta Blocker for the Side Effects of Methylprednisolone

GCA and remission

GCA and Myasthenia Gravis

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