Hi all....wonderful to have all of you to talk to and read about.
So, here is my comment/question. I am currently at 10 mg pred...experimenting with 5 mg a.m. and 5 m.g. p.m. Seems to be helping me, especially in the morning, be able to deal with my pain and stiffness. I honestly can't tell you if the pain is from having tapered from 25 mg to 10 mg too fast or if these are withdrawal symptoms or both. I didn't taper very fast but did not do the dead slow method. Currently, the stiffness is intermittent...some days I have none. The pain is in lower arms, wrists, knees, neck a little bit and shoulders and hips to some extent. Often, it feels very different than the pain I had before I was diagnosed. Some days are very mild and some are more severe. I am dealing with it, and I can function, and at 10 mg I feel like me again. If I go back up to say 25 mg., I can completely eliminate all pain/stiffness. Unfortunately, at that level, I had really major side effects. What is a major side effect? That, in my opinion, is in the eye of the beholder. If I'm a complete raging bitch (I was), that's a major side effect...especially since I have a full time job and was biting people's heads off! Not working is not an option for me financially. I had heart palpitations, all of the fat redistribution, moon face, gained weight, was depressed, etc. etc. So, the absence of PMR symptoms was great, but not worth the total package of side effects that went with that prednisone dose.
So would this be considered an OK compromise...some pain and stiffness (no matter where it's coming from..PMR or withdrawal) with a lowish dose of pred (10 mg) to keep things at a manageable level? Of course, eventually would be shooting for reducing pred, but right now it's not an option. Is this dangerous...I am assuming this may put me at more risk for eventual GCA? maybe not? Will this make my PMR last longer? Will I have long term effects from letting the inflammation have its way, even if it is more muted?
Any comments greatly appreciated, and thank you all again for sharing and caring!!!