GCA and Myasthenia Gravis

[AmyLW]

I would like to connect with anyone who has both GCA and Myasthenia Gravis. I am having trouble separating out the symptoms of the two diseases and I'd like to compare notes with you.

[Estival]

Hello AmyLW ... I have got MG but thankfully not GCA. My wife has PMR and I follow Healthunlocked with her and feel I do know a bit about prednisolone as I took it for over 15 years . As far as I am aware the symptoms of MG and PMR do not overlap. MG is of course a much rarer disease and none of its symptoms are painful. You are very unlucky. The most important thing I would say is that you need to be under a really good specialist neurologist; your problems cannot be treated by a GP. I am very lucky - I live in London and have been under the same neurologist and the ophthalmologist who first diagnosed me for over 20 years. I have seen others suffer for want of good medical advice. (There is a HealthUnlocked Myasthenia site but it is not active.) I may be able to proffer a little more advice if you are in the UK.

[ragdollhippo]

I have MG as well as PMR and at first found it difficult to separate the 2, but spoke to my consultant . I found coping with the fatigue of both diseases more difficult and was getting a double wammy . if you personal message me we can compare notes. Sally