How do you know when GCA has gone into remission. It seems to me that if some people need steroids for very long periods because of adrenal failure how will they know if the GCA is in remission? Maybe I am being a bit dim about this. Also I get awful crackling in my neck, which is stiff and sometimes painful, especially if I move my head to one side. My sinus' are always blocked but I seem to have no infection. Have found Sudafed to be the best thing for that. I am on 22 mg Pred having reduced over 7 months from 60 mg. I go down 1 mg at a time and stick at that for a week but I do get odd flare ups still. Many thanks for all the help I have had on this site especially from Dorsetlady and PCPro.
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