Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2016

Tingling scape+ hair loss

This morning my scalp is tingling all over,plus I have been loosing a lot of my hair this last month..does anyone eke experience this?

This morning my scalp is tingling all over,plus I have been loosing a lot of my ...

•8 years ago

12 steps to handle stress of pmr

So I am realizing that PMR has completely overtaken my life and my husbands as well. So as I am looking for tools to handle this disease I realized I needed to...

So I am realizing that PMR has completely overtaken my life and my husbands as w...

•8 years ago

Seeing brief white flash in side view

Hi everyone, about 2 days ago I have noticed off and on a brief almost like a flash of white light in my peripheral vision of my left eye. I was diagnosed...

Hi everyone, about 2 days ago I have noticed off and on a brief almost like a f...

•8 years ago

Want to take advantage of all our features? Just log in!

or

Digestive system issues

Does anyone have problems down under? Sorry, i couldnt resist the double entendre. But what im asking about is bowel problems. To put it plainly, my bowels...

Does anyone have problems down under? Sorry, i couldnt resist the double entendr...

•8 years ago

Do you think this is to reducing to fast ?

Would appreciate your advice please ?? My GP set this reduction

Would appreciate your advice please ?? My GP set this reduction

•8 years ago

Hello everyone

My question is concerning my immune system. I now have 4 auto immune diseases. I am on 50mg pred ATM. Have been trying to improve my diet. As my immune system...

My question is concerning my immune system. I now have 4 auto immune diseases. I...

•8 years ago

I'm new here

Hi everyone I was diagnosed with GCA April 2015 . I'm currently on30mg of prednisolone as I had a flare up 2 wks ago. I was down to 15mg and that seems to be...

Hi everyone I was diagnosed with GCA April 2015 . I'm currently on30mg of predni...

•8 years ago

Increase prednisalone

I am going to increase prednisalone from 2 to 5mg to see if it helps leg numbness and pain. Is this a good idea?

I am going to increase prednisalone from 2 to 5mg to see if it helps leg numbnes...

•8 years ago

Suspected GCA after April Diagnosis ? Not confirmed yet

Hi Other than a Chronic back pain and normal other conditions etc, I was feel for around 4 months off par, and then I had a very tender scalp, my eyes felt as...

Hi Other than a Chronic back pain and normal other conditions etc, I was feel f...

•8 years ago

fGCA and blue badge

Has anyone been successful in getting a blue badge for parking. I have GCA and lots of flare-ups so often breathless and extremely weak in my legs. No other...

Has anyone been successful in getting a blue badge for parking. I have GCA and l...

•8 years ago

1st day steroid free and 2nd day of waking with no neck pain! :)

Day 2 of no neck pain waking me....I am so happy and really hope that I do not have PMR and can find another way to manage symptoms. Day 1 of no...

Day 2 of no neck pain waking me....I am so happy and really hope that I do not h...

•8 years ago

Loss of taste and nasty greasy feeling on tongue

Has anyone else had this experience. I can not longer taste most food and drink. My tongue feels greasy regardless of what I do and there is metal nast taste...

Has anyone else had this experience. I can not longer taste most food and drink...

•8 years ago

GCA at 33!

Hi all, I've just found this website and finding it useful so far. I'm only 33 and my GP has diagnosed me with GCA and started me on prednisolone. I'm now...

Hi all, I've just found this website and finding it useful so far. I'm only 33...

•8 years ago

Wedding Mission

I just wanted to share that my sons wedding went off without a hitch, but I was a wreck and in major pain barely could walk let alone dance. So I stood in the...

I just wanted to share that my sons wedding went off without a hitch, but I was ...

•8 years ago

Advice on cold feet

I'm at a loss to know what to think I have ckd stage 4 / hearty enlarged & block anemia & really painful osteoporosis I'm taking 5mg of oxynorm 4x daily...

I'm at a loss to know what to think I have ckd stage 4 / hearty enlarged & block...

•8 years ago

Problems with tapering

After over two years with GCA, I had reduced the pred to 4mg and was getting on well on that dose. My problems with weakness and pain in my legs had also...

After over two years with GCA, I had reduced the pred to 4mg and was getting on ...

PenelopeVita-Finzi

•8 years ago

Feet numbness

I have reduced my prednisalone to 2mg but I am getting severe feet numbness. Is there a connection?

I have reduced my prednisalone to 2mg but I am getting severe feet numbness. Is ...

•8 years ago

Depo-medrol Injections for the treatment of PMR

In early July, 2016, while vacationing in the Adirondacks of New York, I began to suffer from significant night pains in my shoulders and hips that completely...

In early July, 2016, while vacationing in the Adirondacks of New York, I began t...

•8 years ago

Newbie

Hello I am new to this site, diagnosed with GCA 2months ago started on 60mg of Pred for 3days now done to 25mg.Having some bad reactions to the medication...

Hello I am new to this site, diagnosed with GCA 2months ago started on 60mg of ...

•8 years ago

Still not sure what got me

Drs dont thinki have gca now. I still have left eye vision loss, & now some mild trouble in my right. Still no solid diagnosis after this suddenly happening...

Drs dont thinki have gca now. I still have left eye vision loss, & now some mild...

•8 years ago

4 more days on 3mg then stop!

And in the scheme of things, I am not too bad. I do have some aches and pains but nothing specifically bilateral apart from my index fingers. Slight, very...

And in the scheme of things, I am not too bad. I do have some aches and pains bu...

•8 years ago

Confused about how to reduce prednisolone

I was diagnosed with PMR and GCA in May this year and put on 50 mg prednisolone with miraculous results and a feeling of euphoria! CRP level was 90 and plasma...

I was diagnosed with PMR and GCA in May this year and put on 50 mg prednisolone...

•8 years ago

Steroid withdrawal , miss diagnosis or what .

Hi Al . I have been successfully reducing for some time now start d on 20mg pred June 2015, currently down to 5.5 mg of pred , the rhuemy wanted me to go in...

Hi Al . I have been successfully reducing for some time now start d on 20mg pred...

•8 years ago

How can I recognise a flare during a reduction of my Prednisolone dose?

I am particularly interested in early symptoms that warn of an impending flare. My Rheumatologist has given me a programme of reduction from 15 mgs. For one...

I am particularly interested in early symptoms that warn of an impending flare. ...

•8 years ago

Flat emotions

Seem to be successfully reducing on the dead slow plan and am now at 18. I am wondering tho I feel kind of flat emotionally. My responses outwardly are...

Seem to be successfully reducing on the dead slow plan and am now at 18. I am wo...

•8 years ago

1
...
4
5