Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,881 posts

All posts for October 2016

New member--trying to figure this all out- tapering with symptoms but no inflammatory markers

I am currently tapering from 50 mg started in May to now at 22.5mg. My headaches and eye pain were gone but have now increased again. My CRP and Sed rate NEVER...

I am currently tapering from 50 mg started in May to now at 22.5mg. My headaches...

AmyLW

•8 years ago

29 Replies

I suddenly felt I'd aged - Helen Twohig's paper about PMR

While looking up the details of this paper to use for an answer to someone I discovered that it is now available "free to air" without paying for access to a...

While looking up the details of this paper to use for an answer to someone I dis...

PMRpro

Ambassador•8 years ago

25 Replies

Headaches

Hello all I am new here and read all the posts with interest I have had PMR for a year now doing ok now down to 9mg pred but I have startd to have really bad...

Hello all I am new here and read all the posts with interest I have had PMR for ...

Hidden

•8 years ago

2 Replies

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PMR Big thank you. 🐝

I would like to say a very big thank you for all your help and advice yesterday . As you know I was having such a big day feeling very low and isolated , in...

I would like to say a very big thank you for all your help and advice yesterday ...

Zellamze

•8 years ago

4 Replies

Flu jab yes or no?

I am due to have a flu jab, at my own request, through my doctors surgery but without specific advice from a GP. I seem to remember a previous discussion on...

I am due to have a flu jab, at my own request, through my doctors surgery but wi...

SheffieldJane

•8 years ago

20 Replies

Feeling low on steriods

Hi! Back on 15mg after a flare up. Been eating more and feel really upset and low. I don't know if I'm now depressed? I don't want to upset you all but I feel...

Hi! Back on 15mg after a flare up. Been eating more and feel really upset and lo...

Zellamze

•8 years ago

38 Replies

Manchesterlady

Hi , I'm new here , I have been reading lots of your posts and have to say what a helpful site this is , with so many wonderful people on it . My doctor...

Hi , I'm new here , I have been reading lots of your posts and have to say what...

Manchesterlady

•8 years ago

8 Replies

MOBILITY

I have had PMR since March and down to 10mg of Pred. Since this all started I have lost my mobility and now having to use a walking frame to get around. I have...

I have had PMR since March and down to 10mg of Pred. Since this all started I ha...

CarrieP

•8 years ago

22 Replies

Incriminating wheat

This is interesting. http://mentalfloss.com/article/87511/scientists-find-non-gluten-cause-wheat-sensitivity Not as recent a discovery as that article...

This is interesting. http://mentalfloss.com/article/87511/scientists-find-non-gl...

HeronNS

•8 years ago

8 Replies

Sweating

Does prednisone cause you sweat more?

Ligtocicar

•8 years ago

16 Replies

LOVELY WELCOME AT THE CHERTSEY GROUP

For anyone who doesn't go, you should reconsider. What lovely super people. I was made to feel very welcome and will be going again. Thank you

For anyone who doesn't go, you should reconsider. What lovely super people. I wa...

Hidden

•8 years ago

7 Replies

PMR-GCA Support East Anglia eeting

Thursday 20th October, at 1030 Needham Market Community Centre, School St, Needham Market The speaker will be Richard Watts, Consultant Rheumatologist, mainly...

Thursday 20th October, at 1030 Needham Market Community Centre, School St, Needh...

Vanner460

•8 years ago

2 Replies

To split or not split 40 mg of prednisone

anyone on 40 mg of prednisone and how are you taking it? In one dose morning or splitting doses. Having another flare Dr. bumping me from 30 to 40 wants me...

anyone on 40 mg of prednisone and how are you taking it? In one dose morning o...

casse

•8 years ago

16 Replies

Increased pain

Started pred 3 years ago for GCA and Polymyalgia 40 mg. Diagnosed also with cervical spondylitis. I have managed to get down to 3 mg. Saw rheumatologist a year...

Started pred 3 years ago for GCA and Polymyalgia 40 mg. Diagnosed also with cerv...

Freeman12

•8 years ago

5 Replies

Swollen over eyes

Ok this the second time this has happened and I am not sure why... The area just above my eyelids on both sides looks like someone filled this area with fluid...

Ok this the second time this has happened and I am not sure why... The area just...

Hidden

•8 years ago

14 Replies

Azathioprine

Hi all this is my first post on PMR site . I saw my rum dr 3 weeks ago who confined it was PMR I had , she wants me to start on this drug along side my 5mg of...

Hi all this is my first post on PMR site . I saw my rum dr 3 weeks ago who confi...

Bacardi

•8 years ago

14 Replies

Anti steroid

I am new here. Suffered pmr for nearly 4 yrs . Dr has taken me off steroids too many bad side affects. Currently taking Tramadol when I need to for the pain. I...

I am new here. Suffered pmr for nearly 4 yrs . Dr has taken me off steroids too ...

Kezy

•8 years ago

13 Replies

Undiagnosed

Hi All I have not been diagnosed (I did overhear the doc mention PMR while looking at the computer screen and looked it up). I started getting extremely sore...

Hi All I have not been diagnosed (I did overhear the doc mention PMR while looki...

Lseen

•8 years ago

4 Replies

Newly diagnosed PMR & GCA 20/9/16

Started on 60mg pred for two weeks and now to 50. CRP 55 down to 5 in a week.Last Thursday evening began severe gastric symptoms; upper and lower abdo pain...

Started on 60mg pred for two weeks and now to 50. CRP 55 down to 5 in a week.Las...

MisOg50

•8 years ago

5 Replies

GLA??

I've just woken up and my left eyelid has dropped and my eye looks much smaller, I have a slight pain in my temple. I have PMR diagnosed since March ( sure...

I've just woken up and my left eyelid has dropped and my eye looks much smaller,...

isabella2015

•8 years ago

6 Replies

Having a flare

Started on 40 mg in April for GCA. Was down to 11/10 mg and went on holiday for 3 days. Obviously did too much and head aches quite bad. I've taken 15 for 3...

Started on 40 mg in April for GCA. Was down to 11/10 mg and went on holiday for ...

Susanmod

•8 years ago

5 Replies

methotrexate

I HAVE PROBLEMS WITH PAIN IN BOTH HANDS EARLY MORNINGS ON STEROIDS FOR PMR. APPOINTMENT IN 6 WEEKS WITH BATH RHEUMATIC HOSP. HAVE TO DECIDE WETHER TO START ON...

I HAVE PROBLEMS WITH PAIN IN BOTH HANDS EARLY MORNINGS ON STEROIDS FOR PMR. APPO...

kennyboy

•8 years ago

13 Replies

Prednisone alternative?

My partner has PMR, was on prednisone for about 11 mo. when she had a bowel perforation. Her surgeon (who performed a colostomy) believes the prednisone was...

My partner has PMR, was on prednisone for about 11 mo. when she had a bowel perf...

PPower

•8 years ago

17 Replies

PMR and PVD now - we're gonna need a bigger pill-box

Soosie56 , Celtic , @PMRPro - thank you, you each win a coconut from my previous post on calf pain ;-) . I now have a diagnosis of Peripheral Vascular Disease...

Soosie56 , Celtic , @PMRPro - thank you, you each win a coconut from my previous...

Hidden

•8 years ago

20 Replies

Lefluminide dose

Hi, I am currently on 3 mg of pred and am also on lefluminide/omprazole, as I am on a fairly low dose of pred do I have to keep taking the other drugs, any...

Hi, I am currently on 3 mg of pred and am also on lefluminide/omprazole, as I a...

Howard523

•8 years ago

4 Replies

Warm relief for shoulders and neck

Thought I'd post something that has been a lifesaver for me. Gardeners supply catalog or online (US) sells a lavender wrap that covers shoulders neck and back...

Thought I'd post something that has been a lifesaver for me. Gardeners supply ca...

bunnymom

•8 years ago

4 Replies

On a plateau at 5mg

I was diagnosed with PMR in June 2014. I know, from visiting this forum, that I have been luckier than most in as much as I don't seem to have had as much pain...

I was diagnosed with PMR in June 2014. I know, from visiting this forum, that I ...

Deemar

•8 years ago

12 Replies

Tocilizumab for GCA

Someone has just posted on the patient.info forum that on October 4th 2016 tocilizumab (Actrema) was approved by the FDA in the USA for use in GCA. I imagine...

Someone has just posted on the patient.info forum that on October 4th 2016 tocil...

PMRpro

Ambassador•8 years ago

25 Replies

At 10 now where

Diagnosed with GCA and started on 40 mg of prednisone in July 2015. Slowly reduced and now at 10. Will be having eye surgery next month and I'm wondering...

Diagnosed with GCA and started on 40 mg of prednisone in July 2015. Slowly reduc...

Nap1

•8 years ago

2 Replies

Taboo female subject

Been considering posting this for sometime,but if it helps someone then good. Pmr causes inflation of muscles. Ok what about vagina muscles? I am definitely...

Been considering posting this for sometime,but if it helps someone then good. Pm...

Stroppymoo

•8 years ago

35 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2016

New member--trying to figure this all out- tapering with symptoms but no inflammatory markers

I suddenly felt I'd aged - Helen Twohig's paper about PMR

Headaches

PMR Big thank you. 🐝

Flu jab yes or no?

Feeling low on steriods

Manchesterlady

MOBILITY

Incriminating wheat

Sweating

LOVELY WELCOME AT THE CHERTSEY GROUP

PMR-GCA Support East Anglia eeting

To split or not split 40 mg of prednisone

Increased pain

Swollen over eyes

Azathioprine

Anti steroid

Undiagnosed

Newly diagnosed PMR & GCA 20/9/16

GLA??

Having a flare

methotrexate

Prednisone alternative?

PMR and PVD now - we're gonna need a bigger pill-box

Lefluminide dose

Warm relief for shoulders and neck

On a plateau at 5mg

Tocilizumab for GCA

At 10 now where

Taboo female subject

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