Update to my PMR vs naltrexone comments posted here:
As I concluded at the end of those comments, I actually have polymyalgic-onset rheumatoid arthritis/disease. I've been posting on NRAS. Low dose naltrexone is working very well for my RD; I have avoided prednisone and standard RD drugs, and my blood test results (including my sed rate and CRP) have dropped significantly. See my other posts for more.
I follow the practice of calling this rheumatoid disease, because it is systemic, and I've actually had the non-arthritic sx for many years, as mild undifferentiated connective tissue disease. I guess this is not uncommon. The cough was likely due to the lung aspect; I have nodules in my lungs. I've had vasculitis/Raynaud's for many years. My shoulders especially have been very crunchy for years, and I had PMR-like shoulder inflammation flares for several years a decade-plus before this erosive RD phase, despite (up to the erosive RD onset) being quite flexible. It affects tendons and muscles, too, not just joints, resulting in my still not being able to lift my arms above 60 degrees to the side. (With PMR, you can usually get to 90 degrees.)
Anyways, my message to the PMR folks is to keep testing for anti-CCP (also called ACPA) as it can develop or increase over time--6 months to 1 year once you are in an "attack". If you have it, you may not have RD yet, but your chances of developing it eventually are very high. If it rises quickly, you are likely headed into the erosive phase. PM-onset RD can be difficult to diagnose; many doctors don't look for it if there isn't a significant erosive arthritic component yet. It is also something you need to catch quick, as it can progress quickly and do a LOT of damage including killing you (cardiac and respiratory aspects). Rheumatoid factor is also helpful, although less specific.
Good luck, folks. I found this community to be very helpful when I had the tentative dx of PMR. I now know local folks who've had PMR, too. I'd never heard of it before I got it. The disease needs a lot more exposure and research. I'm glad to see that other folks are trying LDN for PMR!