I am cutting down the Pred at 5mg per week having started at 60 and now down to 30, reducing in 2 1/2 mg intervals , ie half a tablet. Have been really ill for some time with swollen feet, utterly exhausted, with very weak legs. Also my sinus' are swollen and blocked and I feel like something is moving round in my head. Was due a special celebration meal tonight in a posh restaurant but I had to cancel as I could hardly get out of the bath. Having a take-away pizza instead. I have no rheumatologist at the moment as he has gone back to Iceland and next appointment is 9th Sept with a rheum nurse. My GP seemed to know little about GCA. She said as I was already taking antibiotics she would not prescribe any and my problem was mostly swollen sinus. I am taking three antibiotics per week as a preventative. I find it hard to know if it's reaction to red reduction or a flare but I really want to get the Pred down having been on it for 3 1/2 months. Am also worried about my 24 year old son which doesn't help. Am sorry to moan on but I am feeling very down and find this so hard to cope with. Resting much of the time but it doesn't seem to be helping
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