My PMR diagnosis was 5 years ago when ESR was 66. I was feeling awful in May this year on 4 mgs. On 21st June 2016 after 2 x 6 weekly checks it had risen to 16 so my GP put me up to 10 mgs a day which made me feel OK as I still do. 5 days later my husband was desperately ill and went to hospital as an emergency - I thought I had lost him. After 10 days he has been home under my care. Without those 10 mgs I am sure I could not have coped. The last 2 ESR checks have been 10 and now 8. My GP suggests a reducing plan that works out at 3 mgs less every 4th week/month. Does this seem reasonable to those of you who understand? The last time I asked for advice, a kind person warned about reducing much slower at the 6 or 5 mgs mark. I so want to do the right thing and get off prednisolone or find my maintenance level. At 79 my eyesight is not so good, I have recently lost my sense of smell and painful knees and feet mean I walk with a stick at a snail's pace. I read all posts and my heart aches for others who are suffering. BIG THANKS to all who help others and best wishes to you all.
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