Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for May 2016

No diagnosis yet

Hi I have been getting a lot of neck pain putting down to muscle spasm going with the nerve pain in my now frozen shoulders. After reading your piece about GCA...

Hi I have been getting a lot of neck pain putting down to muscle spasm going wit...

Dawnie08

•8 years ago

3 Replies

Doses and tapering

Hi everyone, Well after several attempts to move my nuero opthomologist appt. up it is not possible so I'm still set for the 18th, next week thank goodness....

Hi everyone, Well after several attempts to move my nuero opthomologist appt. up...

Shastring

•8 years ago

13 Replies

Some good news....for now!

A quick background of my journey.... I was diagnosed with PMR in April 2015. Started at 20mg of prednisone, and except for a short flare at 7.5 and going back...

A quick background of my journey.... I was diagnosed with PMR in April 2015. Sta...

Reneej

•8 years ago

7 Replies

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Doing too much

Yesterday I did far too much in the morning and really suffered for it. I seem to find it difficult to just sit and rest and am worried I will never get...

Yesterday I did far too much in the morning and really suffered for it. I seem ...

christine2715

•8 years ago

5 Replies

Why montgomery cherries?

With all this talk about self medicating with herbal remedies and out of season imported fad foods, how about enjoying the wonderful variety of UK fruit and...

With all this talk about self medicating with herbal remedies and out of season ...

Fernan

•8 years ago

7 Replies

Newbie

Hi Everyone Have had a recent diagnosis of PMR from, GP. Started me on 15mgs pred for twelve days with little effect. Pain in shoulders ,neck , arms and wrist...

Hi Everyone Have had a recent diagnosis of PMR from, GP. Started me on 15mgs pre...

Crumb1

•8 years ago

7 Replies

Is it spinal stenosis and/ or PMR flare

I am in my 3rd year of reducing the PRED to nearly 11mg-been reducing on a 7-8 wk cycle. Generally doing OK and then diagnosed with Spinal Stenosis -thought at...

I am in my 3rd year of reducing the PRED to nearly 11mg-been reducing on a 7-8 w...

Hidden

•8 years ago

6 Replies

Haemoglobin

Hello again friends. I have just got my latest blood test results back, my CRP is 0.8 and ESR is 10, so it seems that my adding raw garlic daily to my eating...

Hello again friends. I have just got my latest blood test results back, my CRP i...

Sandybo

•8 years ago

3 Replies

When did you start to feel vaguely well?

To give myself something to look forward to while I wait out my latest pred reduction phase, I would be interested to hear when people who started on 60mg then...

To give myself something to look forward to while I wait out my latest pred redu...

CloudGazer6

•8 years ago

9 Replies

Immune system and pred

Hi all Have managed to get down to 7mg without great deal of discomfort but have now got a sore throat which is taking a while to go. Been to DR got...

Hi all Have managed to get down to 7mg without great deal of discomfort but have...

Sisterj

•8 years ago

15 Replies

PMR Flare

Hi All, Experiencing a flare right now. Was stable on 12 mg pred. Have had to go to 20 mg pred about 1 week. Holding my own (just barely). How long should I...

Hi All, Experiencing a flare right now. Was stable on 12 mg pred. Have had to go...

rockyandzeus

•8 years ago

8 Replies

Montmorency cherry supplements

Does anyone have any views/experience of montmorency cherry supplements to help with symptoms of PMR?

Does anyone have any views/experience of montmorency cherry supplements to help ...

margiebell4

•8 years ago

15 Replies

Sleepless nights

Took the herbal sleeping draught and managed to sleep from 10.30 to 1 pm then could not get back to sleep at all so took the advice of others who had posted...

Took the herbal sleeping draught and managed to sleep from 10.30 to 1 pm then co...

christine2715

•8 years ago

2 Replies

Sweats

Does anyone get problems with head sweats where it runs down side of face and a lot on forehead Thanks for any advice

Does anyone get problems with head sweats where it runs down side of face and a ...

Rusty8

•8 years ago

19 Replies

New to PMR

On a cruise at the beginning of April 2016 I got a sore right arm. I thought I had hurt my arm lifting my heavy suitcase. Five days before the end of the...

On a cruise at the beginning of April 2016 I got a sore right arm. I thought I h...

May10

•8 years ago

9 Replies

I thought it had gone

I have been on my PMR nightmare for 4 years and a half years. Since January I felt great and after normal blood test at 2mg and 1mg I finally tapered off...

I have been on my PMR nightmare for 4 years and a half years. Since January I f...

JUDEAPUDE

•8 years ago

4 Replies

UKIVas study

Are any of you taking part in the UKIVas study? I have been asked to participate by my hospital. It is a vasculitis susceptibility and patient outcomes...

Are any of you taking part in the UKIVas study? I have been asked to participate...

jeannette65

•8 years ago

4 Replies

Managing prednisolone weight gain and bloating - some ideas

The others have said some very useful things about managing with the weight gain and body shape changes. I have also been doing quite a lot of research into...

The others have said some very useful things about managing with the weight gain...

CloudGazer6

•8 years ago

7 Replies

Sleepless nights

I am on 60 mg Pred having been diagnosed two weeks ago. I am utterly exhausted with the lack of sleep. I only seem to be sleeping 3-4 hours a night and that...

I am on 60 mg Pred having been diagnosed two weeks ago. I am utterly exhausted ...

christine2715

•8 years ago

14 Replies

Anyone tried Cyclophosphamide?

A dear friend of mine was diagnosed with GCA in January. She lives in London and is not all happy with the Consultant she is seeing as she says he is not...

A dear friend of mine was diagnosed with GCA in January. She lives in London and...

Queenfisher

•9 years ago

13 Replies

Confusion over diagnosis

Hi following on from the post fibre myalgia or PMR I'm not sure which I have if either. My rheumatologist changed my diagnosis from PMR to fibre in a letter...

Hi following on from the post fibre myalgia or PMR I'm not sure which I have if ...

Nicky1969

•9 years ago

40 Replies

REDUCING TO 7.5

I was first diagnosed with PMR in September 2014 . I have been an avid reader of this site since then and have learnt so much from everyone. This has been my...

I was first diagnosed with PMR in September 2014 . I have been an avid reader of...

siran-22-46

•9 years ago

13 Replies

Headache / Eye Pressure Without Inflammation?

I've had GCA diagnosed since Jan 2015 and am currently on 20 mg prednisilone, and have generally been ok, apart from a flare up last June when tapering down to...

I've had GCA diagnosed since Jan 2015 and am currently on 20 mg prednisilone, an...

Ronnie101

•9 years ago

10 Replies

SINUS PROBLEMS

Diagnosed PMR some 9 months. 8 weeks ago suddenly had what I would call a "head cold" couldn't sing properly at Church and gone deaf in right ear, so...

Diagnosed PMR some 9 months. 8 weeks ago suddenly had what I would call a "hea...

rogerthegov

•9 years ago

7 Replies

Recent dignosis

I was diagnosed with PMR about a year ago after blood test it was previously classed as Fibromyalgia for about 4 years until correct diagnosis. I have heart...

I was diagnosed with PMR about a year ago after blood test it was previously cla...

onthescrapheap

•9 years ago

9 Replies

Too tired to think.

I have been doing so much studying about this diagnosis and dealing with the pain in my body and head. I was started on 50mg of prednisone 3 days ago and it is...

I have been doing so much studying about this diagnosis and dealing with the pai...

zelma1915

•9 years ago

21 Replies

Diagnosed about 3 weeks ago with PMR with possible GCA.

I am fairly new at this but I have a good medical background. My symtoms started around December when I was recovering from a total knee replacement due to...

I am fairly new at this but I have a good medical background. My symtoms started...

zelma1915

•9 years ago

6 Replies

New to GCA

I was diagnosed with GCA two weeks ago after three weeks in hospital and an ESR reading of 143. I am now very much better on Pred but still breathless and...

I was diagnosed with GCA two weeks ago after three weeks in hospital and an ESR ...

christine2715

•9 years ago

5 Replies

Butterfly feelings in my chest

Hi I was wondering if anyone else has experienced little butterfly like sensations on the left side of their chest . A nurse I know has told me it can be...

Hi I was wondering if anyone else has experienced little butterfly like sensatio...

MayH

•9 years ago

12 Replies

Off Blood Thinners

Hope all are well. I'm involved in management of a nonprofit, here in the U.S. We work with and advocate for survivors of nonconsensual experimentation, here...

Hope all are well. I'm involved in management of a nonprofit, here in the U.S. W...

Whittlesey

•9 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2016

No diagnosis yet

Doses and tapering

Some good news....for now!

Doing too much

Why montgomery cherries?

Newbie

Is it spinal stenosis and/ or PMR flare

Haemoglobin

When did you start to feel vaguely well?

Immune system and pred

PMR Flare

Montmorency cherry supplements

Sleepless nights

Sweats

New to PMR

I thought it had gone

UKIVas study

Managing prednisolone weight gain and bloating - some ideas

Sleepless nights

Anyone tried Cyclophosphamide?

Confusion over diagnosis

REDUCING TO 7.5

Headache / Eye Pressure Without Inflammation?

SINUS PROBLEMS

Recent dignosis

Too tired to think.

Diagnosed about 3 weeks ago with PMR with possible GCA.

New to GCA

Butterfly feelings in my chest

Off Blood Thinners

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