A dear friend of mine was diagnosed with GCA in January. She lives in London and is not all happy with the Consultant she is seeing as she says he is not giving her enough information. From his suggestion she has just started on cyclophosphamide as a steroid sparing agent. She is currently on 30mg pred.
Has anyone any experience with this drug, its effectiveness, side effects etc.?
Also is there is support group in the London area, as I feel that would be a good resource for her if she wants to change her doctor.
Unfortunately, as I live "across the pond" in Texas I can't be much help to her in that regard.
Thanks for any input!