Yesterday I did far too much in the morning and really suffered for it. I seem to find it difficult to just sit and rest and am worried I will never get better if I don't. I bought a new shower door, 5 bags of shopping, did a load of washing, planted crocus, cleared out some pots in the garden, made lunch etc. and I had been up at 5 am clearing out my studio.
I had thought I would snooze for an hour in the afternoon but my daughter came round which was lovely and at 4 I had another unexpected visitor. By evening I felt really awful and odd symptoms had come back. Had really bad night sweats all night. I am only 3 weeks after diagnosis so I know I should be more sensible. Today being good and taking it easy.
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christine2715
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We've all done the same! Next time don't do it all on the same day -learn to manage you and your jobs! That way you still feel you've achieved something without wiping yourself out.
Oh Christine, we've all been there and learnt the hard way. Reading what you achieved yesterday has me feeling exhausted just reading it.....and I'm no longer on steroids. But I can so understand that you are finding it difficult to rest at this stage as you are on an extremely high dose of steroids. I started a little lower than you (40mg) and that had me almost climbing the walls and feeling like spring-cleaning the house! I do hope you can curl up with a good book and have a good rest with some catnaps today to make up for yesterday's 'marathon' day!
I agree the the comments above. We have all been there! Especially early in diagnosis on high dose Pred. I felt better than I had done in months and this just added to the in denial and doing too much. I really had to work at "doing nothing" it didn't come naturally to me. But now I have learnt to plan ahead and pace myself, I don't feel guilty for taking a nap or having a "book day" I now know that is what I must do to get well again. Learn to enjoy resting. X
I have done the same kind of whirl of activity, especially when I was on 40 mg of Prednisone for so long for GCA. There is a great website called. Flylady.com which talks about breaking chores, activities in to small increments of time. It wonderful.
I have been in rest mode for 6 weeks after breaking my tibia and fibula above my ankle. I have moments where I have to get out of the house or I will start screaming (unfortunately on the inside). I am now on 5mg of Prednisone, so there isn't that high any more that I can conquer the world.
I wish you the best. Finding the balance is a challenge every day.
I just read a quote by Joseph Campbell this morning, "Find a place inside where there's joy, and the joy will burn out the pain."
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