Hi following on from the post fibre myalgia or PMR I'm not sure which I have if either. My rheumatologist changed my diagnosis from PMR to fibre in a letter following a visit. He did not discuss it with me so was pretty shocked. He said as my bloods are normal and because I am only 46 I don't fit the profile. I was on 15mg of pred and it has taken 6 difficult months to come of it. After about 2 weeks of being steriod free suddenly all the aches and pains came back! I was on morphine patches 5mg and my doctor told me to just stick another patch on taking it to 10mg. The consequences were not nice I was totally out of it!
I'm so upset with all of this. I blew up immediately on pred so don't really want to go down that route again. Is their an alternative non steriod based??
The steriods worked and I was no longer in pain so if that worked maybe the diagnosis should be PMR?
I'm waiting on a 2nd opinion I'm with benenden private healthcare so although I will see someone else more quickly I have no choice on who that will be.