Well after several attempts to move my nuero opthomologist appt. up it is not possible so I'm still set for the 18th, next week thank goodness.
My Rheumy still has me on the 10 mil of pred not wanting to up it and the symptoms still I never got back to that feeling great before he tapered me then put me back up. I have asked to get a bit more he says no so I'm coping with the neck stiffness, groin pain & shoulder pain because it is there but not severe. I am now finding that while I take the full dose of pred every morning at 5am I'm feeling better until mid afternoon, nighttime I'm at my best. Once I awake its pretty bad.
I'm hoping that I get answers next week because my eyes have been bothering me but thankfully the scalp pain has only been mild, not constant so I'm assuming it's because of the pred.
My question is, is it better to deal with some symptoms and stay on this dose, or go up because if the higher dose helps the inflammation then maybe it's easier to start to taper after being on higher dose. I'm so sorry this is confusing or long but trying to understand how it works. I'm thinking the higher dose works to help the inflammation then when you go down theres less chance of a flare.