Hope all are well. I'm involved in management of a nonprofit, here in the U.S.
We work with and advocate for survivors of nonconsensual experimentation, here in the U.S. and internationally. It can be demanding and sometimes, I lack the time to keep up with groups, blogs and correspondences that are important to me.
GCA is a rare disease, here, with little support. I have some vision loss from GCA, hopefully no more. I'm on a maintenance dose of medrol at 2 mg. s and have been hospitalized for flares, when it is " upped". Would like to stay at two until I'm off of it, if possible.
I agree with PMRPRO that it is an autoimmune disease, and I find it a difficult one.
Wanted to share that I'm back to 81 mg.s of aspirin, and off of the apixaban, blood thinner (no more clots).
Feeling better on the aspirin, seems to help the headaches.
I hope all are well and Happy Mother's Day to everyone (men members, also!).