Sweats

[Rusty8]

Does anyone get problems with head sweats where it runs down side of face and a lot on forehead 

Thanks for any advice 

[Celtic PMRGCAuk volunteer]

Rusty, I remember those days well especially when on higher steroid doses starting at 40mg which saw the perspiration dripping down the back of my neck.  Often I would sit with a towel wrapped around my head but decided that just held in the heat causing more discomfort.  Then I hit on the idea of wearing a towelling headband a la Wimbledon!  Also avoid wearing anything other than cotton so that the heat can escape, and avoid coffee, spicy foods and alcohol (sorry to be a party pooper!)

[Rusty8 in reply to Celtic]

Thanks so it is the steroids although only in 10 mg daily 

As for coffee spices foods and alcohol don't do any of those but yes on thinking about it ,it does get worse after drinking or eating also through the night waking up for wee after been it subsides strange lol 

[jinasc in reply to Rusty8]

I wish it was only the steroids.

Mine started in the menopause and 25 years later it still occurs.  It was no worse when I was on pred.

In remission for 5 years and counting.

[Runrig01]

Yes I regularly look like I've been in a tropical rainstorm, and sometimes dry my hair 4 times a day. Mine definately seems connected to when I'm having flares. Ive not found anything that settles it. I have gone for long periods without it, but when it's bad I carry a flannel in my handbag to dry my hair, I just feel so dirty when m sweating that badly. Hope it settles soon X 

[Rusty8 in reply to Runrig01]

Hi it seems like we have to grin and bare it it doesn't seem as if there is anything we can do about it 

Oh to be normal haven't known what that feels like for many a year with other problems 

Did have a month when first started steroids family were telling me to slow down lol but not having had that feeling for years it was great to me although didn't last long not to worry there are people out there worse then us 

[Jenlouh]

Hi there, yes that happens to me also. I've constantly got the fan on. It seems to be worse since being on the steroids and antidepressants, however I was getting it bad some months back before diagnosis but found my hormones were low and went on HRT. I thought this had cleared it. I'm 42. I started on 40mg but now on 20mg and decreasing. 

[piglette]

I used to look as if I had just been swimming so I would tell people that is what I had been doing! It has improved recently, although it can still be pretty bad. When I told my rheumy about the problem he just laughed, I could have killed him.

[zelma1915]

I feel like I am going through the change again. I get so hot and sweaty. In five minutes I will be cold again. I am still so aching on 50 mg prednisone. My rib cage and shoulders just ache continuously.

[Hidden]

Yes it's a major inconvenience isn't it .yes my ribs and shoulders  hurt too .Did't relate  that to  PMR I am still struggling to work having had to give up my full time job and work part time ,I thought it was the new job .Yep hot /cold and sweaty . Sigh . My doctor makes no comment as usual . Frustrating .

[Greensleeves]

Hi yes even though I'm only on 5mg pred I get drenched with sweat . My makeup runs down my face and people stare and must wonder what on earth is wrong with me . It does make you feel dirty and mucky and we must surely get very dehydrated. xx

[Doralouise77]

Yes, it's so embarrassing to be out in public and dripping into your dinner plate....for me the sweats seem less when I get down to 17.5,  not gone but usually accompanied by exertion.   I still have to keep the house cool though and feel quite ill (weak and nauseated) if put into a warm environment. 

Cheers 

[IslandShell]

Yes, my hair becomes sopping, if my hands are busy and I am not able to wipe it away it is running down the sides of my face, my nose & pooling under my eyes. I have had this all the way along from 20mg. Pred. to still dripping at 4mg. I have little battery operated fans around the house to pick up and point at my face, one in the car too.  Best wishes to you Rusty8.

[Joyful13]

Yes, I have had profuse sweating again since I have lowered the Prednisone dosage. I was at 40mg for a long time, and now at 5 mg. Also have a fractured Tibia and fibula above the ankle since Easter. Any exertion causes pools of perspiration running down my face, hair soaking wet, and back. It is really frustrating to have it happen right after I've taken all the time to shower.

[Pred60lady]

Hi, I really feel for you as I have suffered with sweats which I put down to the menopause which I started at 48. I  went on pre 8 years ago and am still being treated for pmr  and now on 7mg.  A friend who also has pmr and gca suggested it could be due to the steroids!  I was sweating terribly when I met with her Monday and yesterday took my granddaughter to her usual music group and I felt so embarrassed as for nearly the whole hour I was sweating buckets, my hair was driving wet and I tried discreetly fanning myself. Menopausal sweats don't usually last that long so I am going  to  put it to my Consultant in June as I cannot find anything on the pred leaflet saying can cause sweats. Good luck.

[isabella2015]

Oh Oh OH isnt this forum so good! I was diagnosed with PMR (what is GCA please?) afew weeks ago but prior to that I was swweating - wet hair trickerling down my face, and this has been going on for over a year - will now take flannel with me and usually take a fan. Friends also ask if Ive been swimming. I thought it maybe cos I was taken off hrt and it could be the menapause symtoms id avoided. Ha ha Im 74! This is all very strange, as Im on warfarin cos of artrial fibullation - any comments, Im in UK thankyou.

[PMRpro Ambassador in reply to isabella2015]

GCA is Giant Cell Arteritis - they are felt to be closely related and about 1 in 6 PMR patients does develop it. PMR probably affects small arteries, GCA affects large ones and giant cells form. It can affect the arteries in the head and may reduce the blood flow to the optic nerve and if damage is caused to that it can affect your sight.

I have a/f too, mine is probably due to the autoimmune part of PMR. It started after the PMR started so wasn't due to pred which is what usually gets blamed for the palpitations. And I too had come off HRT about a year before PMR started - not unconnected I feel.

[isabella2015 in reply to PMRpro]

PMpro I realize you wouldn't have seen my Thankyou! As you are so good at helping so many you probably didn't even notice! But I do want to know how helpful and what a relief.

[isabella2015]

Thank you so so much PMRpro really good to get your reply. Since I have been on pred. Now 15 mgs I'm sure my memory has improved abit and I'm sure I'm more alert mentally!! Thank goodness, has anyone else found this?

[diamondwendie]

Hi rusty, I'm the same and it's taken over my life, can't even socialise with ananyone. So I really do understand where your coming from had tests for over a year and they can't find anything which is soooo frustrating. Was even putting deodrent on my head and face in desperation sending big hug x