I've been slowly dropping my Pred over the last year and am now paused at 10/11 mgs. My worst symptom is jaw pain and last night I was woken by terrible pain in my tongue. I suppose my lingual artery must be inflamed. It is so weird! My temporal arteries rarely hurt these days. I should probably up my steroids but I am so fat and just getting all my pills from the doctor is enough of a palaver. It's a Pollyanna day where I must count my blessings but doing it through clenched ( aching!) teeth. Trying to keep my steroids low enough to qualify for my hip replacement where they would like me on 10 or less. Heigh ho.
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