I have recently been diagnosed with PMR. However... - PMRGCAuk

PMRGCAuk

21,324 members40,434 posts

I have recently been diagnosed with PMR. However several friends & family members queried the diagnosis and asked if I was certain I did no

greylife profile image
6 Replies

have lyme disease. I'm from Canada and there has been a lot of publicity around this tragically under diagnosed disease. The symptoms are very similar to PMR but the treatment is different...antibiotics mainly. They say going on prednisone masks the real culprit.

Written by
greylife profile image
greylife
To view profiles and participate in discussions please or .
Read more about...
6 Replies
piglette profile image
piglette

If it is Lyme disease corticosteroids are the last thing you should be taking as they suppress the immune system which is definitely not what you want. I think someone said it was like giving kryptonite to Superman.

I was certainly tested for Lyme disease as it can mimic PMR symptoms. I am not sure that Lyme disease has a predilection for females over 50 of North European origin. As ticks are more prevalent in Scotland, than the rest of the UK, then you would expect proportionately more PMR in Scotland, which I don't think is the case.

As prednisolone can increase the severity of bacterial infections I would have thought that it would make Lyme disease symptoms worse, not mask them.

Generally PMR responds very rapidly to treatment with prednisolone unlike other auto immune disorders.

I hope you manage to get a diagnosis that you feel comfortable with.

Best wishes

PMRpro profile image
PMRproAmbassador

Lyme disease can be tested for if it is a candidate (if there is none where you live/have travelled then it is less likely) and that should be done as part of the exclusion diagnosis. Not all ticks carry it - and the south of England does have a record I think and I imagine Canada does too in some areas.

Celtic profile image
CelticPMRGCAuk volunteer

greylife, if your symptoms have responded well to the steroids, then your Dr will use that as confirmation of the diagnosis. However, if you still feel concerned about Lyme Disease, then why not ask your Dr for the relevant blood test to put your mind at rest?

polkadotcom profile image
polkadotcom

Yes, southern England has a high population of deer and I think they carry it more than any other animal. Certainly I was tested for Lyme at the outset - I was living in Surrey at the time and believe it or not, it's one of the worst places for ticks.

kingharold11 profile image
kingharold11

I was tested for lyme disease before finally being diagnosed with PMR. We at that time did a lot of walking in Scotland Northumberland and Derbyshire which all have deer but it was ruled out.

Not what you're looking for?

You may also like...

Recently diagnosed with PMR, following self diagnosis, determination and persistence!

Following an op at Christmas, I experienced severe stinging in base of buttocks and hamstrings...
Marilyn1959 profile image

Update on Rheumatologist Appointment. I was diagnosed on 13th June with PMR and GCA

Since that date no interest was shown in an urgent consultation and I've been working well with my...
cycli profile image

Dupuytren's contracture anyone? I have just been diagnosed with this and wondered if it was related to PMR in any way.

I noticed a hard lump on my palm, in line with my ring finger, off I went to the computer on...
Loco99 profile image

I have GCA and have just been diagnosed with Parkinson's Disease

Is there anyone out there in the same boat? It is not nice. Now I don't know who or what to blame...
Trenny profile image

Recently diagnosed with PMR....Joined grp as I just hoped I could get clarity and advise.....

As I put recently diagnosed with PMR....Some days I feel as if I'm imagining everything .....as the...