First post on here. I have been diagnosed with PMR after waking one morning and hardly being able to get out bed due to severe hip and shoulder pain. I had been suffering various joint pain for years, I'm 58, and was told it was most probably fibromyalgia? I thought that was bad but PMR is a whole new realm of pain.
Started on 20mg day of Prednisolone which unfortunately did not do anything. Ended up on 40mg day and within 7hrs was almost back to normal, in fact better than I had been for years. I have been trying to reduce over the last month or so and got to 20mg but the pain has returned, albeit not to the same level. Now going for more blood test as inflammation marker was 60+ before starting on 40mg but down to 5 after.
Good grief getting the munchies is an understatement and I constantly want to snack.
Obviously as many others I am not keen on being on a high dose of steroids but almost bed bound without and quality of life being crap. Also taking Alendronic acid and not keen on this either.
Just downloaded Kate Gilbert's PMR survival guide on kindle and seems an interesting read.
Off to get more bloods tomorrow and expect to have to raise prednisolone 30mg.
Not sure what else I can do?