Father has had PBC for 16 years - Odd complications since COVID?

[Kylewillmott]

Hello all,

I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid?

My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years).

Within a day of getting COVID his stomach ballooned up with fluid, so did his hands and feet. The drs have suspected water retention as he's having trouble peeing more then 4 - 5 times every 24 hours and has had a few water infections. He also has issues with bowel movement, however the DRs have said this is most probably side effects from the sheer amount of pain meds hes on.

His liver results have remained stable. However Drs are now ordering CT scans to check if he has Ascites. He also had a kidney injury in the last months from a fall down the stairs.

I've ready some unnerving things about Ascites and prognosis, so I suppose I'm just looking for some insight/personal stories.

Thanks in advance.

[butterflyEi]

Unfortunately the internet can be a frightening place. May I point you in the direction of the PBC Foundation. They have a help line where you will be able to discuss your concerns with people who have access to specialists. Google PBC Foundation and you will find all the details you need.