Terrible joint pains : Hi guys as diagnosed... - PBC Foundation

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Terrible joint pains

Elkol profile image
6 Replies

Hi guys

as diagnosed with PBC a couple of months ago but not started Urso yet as my LF are in normal range.

however my shoulder / elbow is killing me at the moment ?

What’s the best thing to take to alleviate the pain?

eleni xx

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Elkol profile image
Elkol
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iagra profile image
iagra

You can safely take something like Aleve, Advil or Celebrex for a short period of time, up to 5 days. But, best not to take any oral medication for this type of pain. Use topical gel called Voltaren, which is 1% DICLOFENAC SODIUM TOPICAL GEL. Declofenac is the generic ingredient. I buy Declofenac topical gel, Kirkland brand, at Costco (I'm in the US). Use it twice a day, rub into the area where it hurts. If pain is severe, I'd take Aleve for a few days to bring it down, and then switch to Declovenac 1% topica gel. Good luck!

Chris21 profile image
Chris21

Depends on what has caused pain? try a heat pad and gentle exercise moving the shoulder.

IAmTheGlue profile image
IAmTheGlue

I have something I ordered off Amazon and it is a Shoulder/upper arm ice pack/heating pad. You can freeze it or microwave it. It helped so much when I hurt my shoulder.

I am in compensated cirrhosis, so my medication recommendations may not apply to you. I was told never, ever take Aleve. Tylenol branded products were okay in limited amounts and advil very, very sparingly. I pulled a rib muscle 2 weeks ago. It has been incredibly painful. I went to urgent care and was given a muscle relaxer so I could breathe deep enough to avoid pneumonia and I took single (half doses) of Tylenol and Advil every 4 hours. The main things that helped is I spent a lot of time in our hot tub, used icey hot and a wearable heating pad. I did do stretches as I’m very afraid of losing my range of motion. My mom cannot walk or raise one arm, so I’m always mindful of staying mobile.

I hope you feel better soon.

Michi1 profile image
Michi1

Voltarin is great, and I also use a natural remedy. Tank the skin and core of an organically grown pineapple, cover them with water in a saucepan, bring to a boil and then simmer for an hour. Let it cool enough to pour the water through a strainer into a glass container. 8 oz of that tea is better in my experience than a high dose Advil.

Michi1 profile image
Michi1 in reply to Michi1

Take, not tank. Typo

Skypony profile image
Skypony

Hi Elkol, bit puzzled by your PBC diagnosis with normal LF. Unless you had a biopsy, diagnosis should depend on presence of AMA plus ALP above certain level, and should then be treated. Suggest you keep an eye on that situation.

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