I think I’m like the majority of us with PBC. My liver is fine, responding well to URSO etc. However, finding travel insurance has been ‘interesting’. Most companies (including the ones listed on the Liver Trust site) are charging almost £2000 for 12 months for me and my husband!! So, we have found a company which will insure for everything other than PBC (which is fine, as my liver is in good shape)
The company is LIVERPOOL & VICTORIA. £200 for a couple, for 12 months, worldwide! Hurrah! They deserve a shout out!
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Jacqui0112
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You wait til you're over 70...I'm 75 had PBc for 19yrs our single trip to Carribean was £1000 for travel insurance even though PBc isn't life threating.. But glad you got it sorted.
Thanks Jacqui , that is a good tip! My Iceland insurance was 160 for a 2 week cruise, I am 55 and travelled with 26 year old son…his was only 20 less than mine. That was Holiday Extras. I was dreading the quote, but was manageable.
Just tried LV for insurance and they would cover all my other ailments until I added PBC. Then just a flat refusal to the extent of refusing to cover the others health issues I had tried to include. What I don't understand is why the insurers questions all clearly show a complete misunderstanding of the disorder, assuming everyone diagnosed is on the brink of liver failure or worse. Does anyone know of any way around this?
I have found a solution to my problems with travel insurance I'd like to share. As mentioned above Liverpool Victoria would only insure me by taking all my health problems off the list, not just PBC. I found two others though who would cover me and my husband - but it was at a cost of around £2500 - 2700 for a year. As a last ditch I decided to try one of these packaged bank accounts with travel insurance included. We are aged 70 and 77 and some excluded us anyway so I ended up with the Co-op. The account is £15pm but also includes breakdown and mobile insurance which we would buy anyway. Each of us had to do a health screening which you can do before swapping/opening the account. With additional health problems there was no extra charge for my partner and for me, a minimal £198. That's for the whole year and is worldwide including the US. I'm overjoyed. I've saved enough to have another holiday! I hope this info is of help to someone.
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