liver levels

[Lena2011]

hi everybody I was just wondering if anyone else has high levels other then the alp? I’ve just had my bloods done my levels r, AST 77, ALP 512, BIL 13, GGT 248 I’ve been on urso for 1 year now and theses level r worring me, don’t no if anyone else has had these kind of numbers many thanks Lena

[butterflyEi]

Hi Lena, as you have just had these results do you have an appointment scheduled with your specialist? Certainly schedule an appointment to discuss this with your GP and to ask for referral back to the specialist. The doctor/specialist will look at the complete picture shown by all the blood test results and will know your medical history. If URSO is not working for you there are second line therapies now available, Ocaliva and Bezafibrate are available in the UK.

Try not to worry, not easy I know but stress is not good for us. PBC for most is a slow progressive disease so there is time to bring your numbers down. I remember it took a while for my numbers to reduce.

Meanwhile - you are probably already doing this but - eat a healthy well balanced diet avoid all processed foods and cut out any hidden sugars. Keep busy but also have good rest.

Come back and let us know what the doctor advises.

Also the PBC Foundation has a help line if you want further help, they have access to specialists for any questions they are not able to answer. 0131 556 6811.

The PBC Foundation is free to join, their website is comprehensive.

[Lena2011 in reply to butterflyEi]

hi yes it was the spaclist that done the bloods and he’s upped my urso from 900mg too 1000mg and rebooked me for appointment and fibrous am not u till October 🤷‍♀️😳

[butterflyEi in reply to Lena2011]

URSO dosage is weight dependent. You can find a weight/dosage chart on the PBC Foundation's Web site. Do give them a call they have well trained experienced helpers.

[Lena2011 in reply to butterflyEi]

yes thank you I looked that up on the pbc page and 1000mg is what I should be on so I’ve been on 900mg for a year already so could be I haven’t been haveing the rite amount

[Rozzie52]

Hi Lena try not to worry my liver enzymes were a whooping 1300 !!!!!! After 3 years on ursodeoxycholic and Octilva now my liver enzymes are 42 without any liver scaring

I hope you get better soon Roz

[Lena2011 in reply to Rozzie52]

omg 😮 wow that has made me feel a little better too no u have no scaring ect I’m glad ur doing much better now that’s amazing.

[Rozzie52 in reply to Lena2011]

Thank you it’s all thanks to a quick diagnosis and medication 😊 it just takes a while for the Ursodeoxycholic and Octilva to work.