I wanted to let everyone know that my fight for disability is finally over. EVERYTHING WENT IN MY FAVOR!!! I couldn't be more happier. Now I'm looking for a house for just myself & my 10 yr old. Thanks everyone for listening to me vent about it. Took two years, but I thank the good lord everyday for how things are starting to look up in my life. Oh, btw, there's no more fiancee in my life so I'm looking to buy a home. Guess he just couldn't hang with a PBC'er. All is well though. One door closes for a better one to open right 😉
Stay strong❣️
Shannon
One more thing, welcome to those of you who have just found this nifty little forum. I truly feel blessed to have this support.
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Shulsey
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Congratulations to you Shannon. You are awesome! It's so impressive that you have achieved all this while being so challenged healthwise. It's like Collette says, only good people get PBC and it makes us s-t-r-o-n-g !! All good wishes for finding the right place for you both.
Yea, to an extent. My GI ordered a EGD. It wasn't that long that long ago that I had my last one. I think my labs came back all crazy again. He also wants to run some special CT looking for stones in my bile ducts. I've been having more pain than usual around my liver. How have you been
I’m sorry. Hope you will be okay. I’m doing okay. My husband left me 3 weeks ago & you understand the emotional impact. It’s a struggle I didn’t need but we find a way to accept the hand we’ve been dealt & try to move on.
I know. We go to Portales which is close to the border. We have gone to texas a few times. Witch city are you by? When I get my social security. And you want company I will come visit. 575 562 0205 call anytime. Nikki
220681ok...i appreciate that. It’s so hard. It is s big loss. My son had lived with us 3 years. We hoped he would move on & as his mom I didn’t have the heart to put him out. So, in turn this is what I got. He has no choice but to go now. I will get through. 😊
I'm so sorry to hear your news Gail - I don't read all the posts so missed it til just now. You're such a lovely, kind woman who is always encouraging to everyone and quick to offer comfort and support.
I do hope you are surrounded by friends and family who are looking after you and supporting you.
Shedding a fiance is a big piece of work - likely now you can have more settled bloods - we'll all be praying for that outcome for you and that'll be a lot of prayers xx
Congratulations! How did you do it, what were your first steps, did you get extended care insurance, what age do you recommend someone starts to get disability.
I saved $ since I was 20 for retirement, seriously saving since 43. Now that I’ve retired I discovered extended care insurance isn’t an option if you have PBC. So money I’ve saved must go to my extended care, I’ve gone back to work 3 days per week and bought a house so I can rent the upstairs. Me too, mine broke up with me since I’m older and have a disease, asymptomatic as it is. His kids refuse to see him, x won’t allow it unless we break up. So main point is if I had extended care for that possibility of liver transplant and old age, I wouldn’t have work so hard sard to stay out of a nursing home and get care at home. Long story, here’s the only place I can tell it, to others experiencing similar situations, mostly women!
The day after my last day of work I file by myself, got denied, twice actually. I finally broke down & hired a attorney. It took about a year with my attorney. It took close too two years of fighting. I'm not sure where you're from, but I live in Southern Indiana. Disability claims are different everywhere.
Thank you everyone for the well wishes. Excited to get my new life going. Found s house that I feel is just perfect for my daughter & myself
Even if my eldest daughter wants to come stay with her new lol family, I'll have more than enough room.
Thanks again fellow PBC'er. I'll keep everyone posted on how my procedures go & if I get this house. So blessed for this forum. Even if I'm nit on here much. Once I've gotten all my wrinkles ironed out . I think I'll start to have more mental peace of mind.
So happy for you. As for the fiancé. BYE BYE!!! I’ve been alone for 17 years and often think, when I’m having a bad day, how much easier it is being alone than with someone who doesn’t “get it”. On the days I feel good, I just want to do what I want to do and not have to worry about anyone else. Enjoy your new home and peace of mind.
I completely agree with you. My life was such a turmoil for so long after getting divorced. I tried dating during the divorce process and it was too much tension. Then afterwards I was dealing with serious financial issues and rebellious teenagers - and then aging, ill, needy (but very grateful - not complaining) grandparents. Once the dust settled, I was just so glad to have peace that I appreciate it and enjoy it every day. The thought of bringing another adult into my world and have to deal with his opinions, moods, illnesses - no thank you. I'm sure some people wonder about me but I know that I earned this quiet and solitude and I enjoy it.
I totally get it. I’ve had people question why I don’t date and I have to remind them this is a choice I have made. And here is what my friends and family really don’t understand. I happen to like my own company. Wins you well!!!
Shulsey, I'm so happy and relieved for you! I've been going through the same thing so I know how stressful it is. Congratulations on your approval and finding a house! I hope you get it!
If you have time... my hearing is coming up in May - do you have any tips for at the hearing? I'm in Minnesota but will be having a video hearing with a judge in Cleveland. I do have an attorney but I know I'll be asked questions.
All the hearing was was the judge asking about day to day activities. Then discussed what PBC is & what other issues I Havre & explained what varicies are & what happens when those aren't kept at bay. It's really smoke once your in with the judge. I was nervous but really had no reason to be. I broke down in the middle of explaining what pbc has done to my everyday life. I'm have no doubt that you'll do great & best of luck. I know mine lifted a huge weight off of my shoulders.
Thank you! I'm kind of afraid my mind will go blank and I'll leave out important details. Thanks for the encouragement and congratulations again to you!
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Good news:)
Does anyone have exercise intolerance?
Hey to All! I've joined the crowd, for better or for worse.
Amazing news
