Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for January 2018

Glimmer trial

Has anyone been on the Glimmer trial in Queen Elizabeth hospital Birmingham? If so what is it like and how did you find it? I'm starting this week on the 25th...

Has anyone been on the Glimmer trial in Queen Elizabeth hospital Birmingham? If...

Lilbear89

•6 years ago

7 Replies

Does PBC effect thyroid function?

I cannot get my thyroid blood work levels stable

Sissymcc

•6 years ago

19 Replies

What exact labs should one request the doc to do to see if they have PBC?

I have been through a ton of scans and tests and nothing definitive. I have crushing fatigue, pretty bad nausea and itching of the limbs especially, a creeping...

I have been through a ton of scans and tests and nothing definitive. I have crus...

Suz_anne

•6 years ago

10 Replies

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Colleen

Hi my name is Colleen and l am new to this l was diagnosed in 2012 but had been very sick from 2008 with Dr unable to diagnose my PBC. I am now 65years old....

Hi my name is Colleen and l am new to this l was diagnosed in 2012 but had bee...

Colryan

•6 years ago

4 Replies

Colleen

Hi my name is Colleen and l am new to this l was diagnosed in 2012 but had been very sick from 2008 with Dr unable to diagnose my PBC. I am now 65years old....

Hi my name is Colleen and l am new to this l was diagnosed in 2012 but had bee...

Colryan

•6 years ago

2 Replies

To shulsey

Hi Shannon, just read your text, u seem very young. If u dont mind how long have u had our wonderful disease? I am 62 and my name is pat. I have had this...

Hi Shannon, just read your text, u seem very young. If u dont mind how long have...

KevinHall10_

•6 years ago

3 Replies

Negative m2/5 weeks later 1300:1, 7 years AMA positive

Hi guys, it's been a very long and frustrating year and a half with so many symptoms. I was waiting a very long time to see a hepatologist on Nhs so I...

Hi guys, it's been a very long and frustrating year and a half with so many sym...

Hastingsgal

•6 years ago

14 Replies

Pbc diagnosed but not been tested

Hi there. I saw the gastro last week after series oh high liver tests. After n hour of prodding, poking and questions he told me I have pbc. He gave me urso...

Hi there. I saw the gastro last week after series oh high liver tests. After n h...

Rleo

•6 years ago

11 Replies

Just saying hello

Just wanted to drop a line to let everyone know Im still kicking. My labs have been as close to normal range as they've ever been, thanks to the Ocaliva. Still...

Just wanted to drop a line to let everyone know Im still kicking. My labs have b...

Shulsey

•6 years ago

29 Replies

Forgot to take medication

I forgot to take my prednisone and Urso this morning and last night I forgot to take Urso and AZA. My children are brutal these days. I’m not sure if I should...

I forgot to take my prednisone and Urso this morning and last night I forgot to ...

Hidden

•6 years ago

9 Replies

Esophageal Lesion

Hello guys. I know this may not be the place to post this, but I don't know anywhere else to go. I had an Upper GI endoscopy yesterday to look for Varacies...

Hello guys. I know this may not be the place to post this, but I don't know any...

NotorDJP

•6 years ago

9 Replies

Many medical conditions

I wonder if my body is rejecting most of my medications. I have on and off skin rashes for more than two years now. Ursofalk is my main suspension that is...

I wonder if my body is rejecting most of my medications. I have on and off skin ...

Evaibrahim60

•6 years ago

19 Replies

Worst EXPERIENCE!!

I apologize this may be long. I was referred to a GI who specializes in Hepatology because of my blood work results. At my first visit with him he diagnosed...

I apologize this may be long. I was referred to a GI who specializes in Hepatolo...

Rebekahw74

•6 years ago

7 Replies

Hair Loss

Quite a few of us, on this forum and other sites, have mentioned how much hair loss they have suffered. My hair has always been fine and thin but with PBC and...

Quite a few of us, on this forum and other sites, have mentioned how much hair l...

butterflyEi

•6 years ago

18 Replies

Thank You!

Dear All, Four months ago I joined this group , because of my mother. She was a patient of PBC and is no more with us after her death I immediately left this...

Dear All, Four months ago I joined this group , because of my mother. She was a ...

saeedasalma

•6 years ago

8 Replies

MISDIAGNOSED

Hi Guys, Has anyone ever been misdiagnosed with PBC iiWAS DIAGNOSED 4YRS AGO AND HAVE BEEN TAKING URSO , NOW MY DR BELIEVES I MAY HAVE BEEN MISDIANOSED, I AM...

Hi Guys, Has anyone ever been misdiagnosed with PBC iiWAS DIAGNOSED 4YRS AGO AND...

susanashworth

•6 years ago

27 Replies

Travel Insurance confusion.

I had no problem finding annual travel insurance last year through my bank, cost £80 which I thought was ok for worldwide insurance. Now I have a problem, I am...

I had no problem finding annual travel insurance last year through my bank, cost...

CathieG

•6 years ago

6 Replies

Fibroscan 12.2?

This is my first visit to this site. I am 73 and was diagnosed in 2014. I take 1000mg of Urso and have just had a fibroscan of 12.2. My LFTs are only...

This is my first visit to this site. I am 73 and was diagnosed in 2014. I take ...

Pin44

•6 years ago

30 Replies

1:40 positive diagnosis criteria

All of the information out there says that For PBC an AMA level of 1:40 is positive. One thing I do not understand is The lab test I had (AMA (M2 EP) says...

All of the information out there says that For PBC an AMA level of 1:40 is posit...

Dwaffle16

•6 years ago

12 Replies

Has anyone tried CBD oil for cirrhosis?

I heard that cbd oil can grow new liver cells - Im actively looking in this but want to know if anyone else has learned anything about it or tried it.

I heard that cbd oil can grow new liver cells - Im actively looking in this but ...

redhead1226

•6 years ago

46 Replies

Article recently updated!

There is a lot of good info here. https://www.emedicinehealth.com/primary_biliary_cirrhosis/page5_em.htm

There is a lot of good info here. https://www.emedicinehealth.com/primary_biliar...

Zelda5

•6 years ago

2 Replies

Rash

Do you get a fine rash with the itch? Never had a rash before

Pamela4475

•6 years ago

16 Replies

I'm new-+AMA, no symptoms, Urso?

So, I've been reading and trying to search for people like me, but I thought maybe it would be easier if I just posted. I'm new here! HI! My story started in...

So, I've been reading and trying to search for people like me, but I thought may...

Bobrummel217

•6 years ago

3 Replies

Igm levels

I read that almost everyone diagnosed with PBC has an elevated Igm level. I am curious to know if that is true? I have elevated ALP and 24.3 on an AMA - M2,...

I read that almost everyone diagnosed with PBC has an elevated Igm level. I am ...

Dwaffle16

•6 years ago

7 Replies

Drug question

Can we take Benadryl if we have pbc?

Pamela4475

•6 years ago

17 Replies

Pbc & auto immune hepatitis

Hi can anybody clarify have been diagnosed with pbc - stage 3 and auto immune hepatitis- still coming to terms with diagnosis - have been referred to work...

Hi can anybody clarify have been diagnosed with pbc - stage 3 and auto immune h...

Cazzie56

•6 years ago

9 Replies

Alone

Has anyone felt like you just dont want to be around anyone, even ur family. There is days when i dont feel good and i get like panic struck and want to hide....

Has anyone felt like you just dont want to be around anyone, even ur family. The...

KevinHall10_

•6 years ago

11 Replies

Flu

Hope everyone is escaping this deadly flu. Both major hospitals in my city have been forced to close their ER because they are overloaded with it. They are...

Hope everyone is escaping this deadly flu. Both major hospitals in my city have ...

gwillistexas

•6 years ago

6 Replies

Stage and grade of PCB

What stage 0 , grade 2 means? Anybody knows?

Elle2018

•6 years ago

2 Replies

High billirubin

Had irretractable itch for the last year.. it’s broken me.. was blessed enough to be given the Glimmer study trial at Birmingham queen Elizabeth after being...

Had irretractable itch for the last year.. it’s broken me.. was blessed enough t...

Melwoods

•6 years ago

17 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2018

Glimmer trial

Does PBC effect thyroid function?

What exact labs should one request the doc to do to see if they have PBC?

Colleen

Colleen

To shulsey

Negative m2/5 weeks later 1300:1, 7 years AMA positive

Pbc diagnosed but not been tested

Just saying hello

Forgot to take medication

Esophageal Lesion

Many medical conditions

Worst EXPERIENCE!!

Hair Loss

Thank You!

MISDIAGNOSED

Travel Insurance confusion.

Fibroscan 12.2?

1:40 positive diagnosis criteria

Has anyone tried CBD oil for cirrhosis?

Article recently updated!

Rash

I'm new-+AMA, no symptoms, Urso?

Igm levels

Drug question

Pbc & auto immune hepatitis

Alone

Flu

Stage and grade of PCB

High billirubin

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