I apologize this may be long. I was referred to a GI who specializes in Hepatology because of my blood work results. At my first visit with him he diagnosed PBC and ordered a liver biopsy to confirm and get a baseline and also scheduled a colonoscopy because he said I was overdue one. Ok, no problem.
I got the biopsy the week before Xmas and no phone call with the results. I assumed it was because of the holiday. After the holiday I called and the nurse apologized and said the results were back the day I had the procedure and the dr would call me back that day.
No phone call but 2 hours later the results appeared online on the patient portal. It was all medical language, sounded scary and didn’t make a lot of sense but my SIL is a nurse and she helped me decipher. Still no Dr phone call!!
Then a week later I get a call from his nurse telling me I have an infection and he is calling me in a medication. Infection?? She later changed that to inflammation(??). She said it was not an emergency but to start taking the medication (Ursodiol) and the dr wanted to speak with me before my colonoscopy and would explain it then.
Fast forward to my colonoscopy, no one seemed to know what I was talking about, even the dr. He acted like my husband and I were being hysterical for asking to speak to him before the procedure. We explained the phone call and he was STILL rude. Had me crying before my procedure. I got a very basic, short tempered explanation of PBC with no personalization or comment on my results. He asked me twice if I read the results he published, like that is all I needed to know.
I am going to ask my GP to refer me to a different doctor. What should I look for, how should I decide on a doctor for PBC? I want to have a doctor picked out when I go back to her for the referral!!