Alone

[KevinHall10_]

Has anyone felt like you just dont want to be around anyone, even ur family. There is days when i dont feel good and i get like panic struck and want to hide. Silly i know, but i am so tired of putting up a front that everthing is ok. Last week i had a desent wk. This wk has been horrible. Just kind of down

[gwillistexas]

Yes, I do & a little too often I’m afraid. Not because I feel bad, because I feel great. Just need a long “me time”☺️

[KevinHall10_ in reply to gwillistexas]

I only do this when i feel extremely tired. Otherwise i do spen time with my family. Does your family understand? My husband says he does, and i think its just me.

[gwillistexas in reply to KevinHall10_]

I don’t think there’s any way they can understand. I know my husband has big concerns but he doesn’t discuss them. He knows about PBC from what my GI explained at my first visit. He went with me, so that shows concern in itself. It’s hard for anyone to understand when I do things as I always have done. Now when the thyroid gets out of whack again, I may be dragging.

[Hidden]

If you feel down regularly maybe a trip to your doctors could help sort it out.

I think a lot of us need time for our own thoughts ( a longer me time as gwillistexas said) but try to be aware if your withdrawing from social contact more than normal, that could be a sign of depression which is treatable.

I make sure I have some me time every day to practise meditation and it helps enormously.

[Melwoods]

Yes I do big hugs

[butterflyEi]

HI KevinHall10_

Yes, totally empathize. After a webinar hosted by the PBC Foundation where certain coping mechanisms were suggested I have started listening via my mobile telephone to guided visualization and meditation videos on You Tube. I have found this 30 minutes to an hour or more if necessary plugged in listening to someone's calming voice very helpful. Getting down is recognised as a problem for long term disorders such as ours. In case you decide to try listening to You Tube I like the voice of Jason Stephenson - I can drop off to sleep quite happily listening to one of his contributions

take care and hope this coming new week is better.

[kimphoebe]

Hi there

I know what u mean recently feeling just can't be bothered to be in anyone's company, getting to the point where I'm dreading even my husband coming home from work. Think I'm becoming a bit of a recluse at the moment 🤦‍♀️

[IAmTheGlue]

Hello KevinHall10_ and everyone,

I feel the same way at times. My husband suggested a couple days ago that I go find someone to talk to, therapy wise. He said that he is trying to be supportive and if he isn't being supportive to let him know what he needs to do... but I honestly could not tell anyone what I need. Everything hurts. I feel like a bit of a freak show. My mom and sister who have never given two craps about me are suddenly pretty interested in me... gossip wise I believe. It's frustrating. It's alienating. I hate being treated like that. Seriously I painted my dining room and my mom came over mid-paint job and was like "are you supposed to be doing that?" I'm like..... ? She said "Are you supposed to be doing stuff like that, won't that wear you out too much?" Yeah, maybe I could just get in a glass box and be on display? Idk. Maybe I'm over reacting but I don't enjoy the false concern so she can call 40 people and give a report. Actually I tell her very little because of that.

I feel like just the fact that this is hanging over me is depressing. I've been in a bit of a dark place lately. My husband is ready to move me someplace warmer, sunnier (Vitamin D) because he is 100% sure I will feel better there. He says I'm always creaky and painful in the cold even before the PBC/AIH. It just feels random how things progress for people. Some people go for many many years with no real progression, some people turn around and bam, PBC smacked them right upside the face. The randomness frightens me. I have 5 kids... my youngest just turned 6 months and I need to be around in good health for them. I'm doing every thing I can to stay/get healthy.

I'm sorry you had a bad week. I hope next week is better for you. I think everyone needs a little alone time sometimes.

[KevinHall10_]

Thank you all for the great feed back. I just sometimes forget that there is really others who feel the same way. I told my hubby how ive been feeling and he tells me to rest. I had all kind of plans to do today, but as usual here i am on my bed, keeping my bones warm. I have all day to do what I need to do. So i will take it as it comes.

[LStonelli]

I know the feeling of wanting to be alone, you feel so horrible that you know no one can understand how you feel

[gwillistexas in reply to LStonelli]

I don’t feel bad, I actually feel great in comparison to others. But some days I would love to come home from work & be alone. I think if for no other reason, just to focus on my thoughts. Most of us are busy with work and family that we don’t get that much needed “me time”.