Had irretractable itch for the last year.. it’s broken me.. was blessed enough to be given the Glimmer study trial at Birmingham queen Elizabeth after being referred there from my consultant in aintree. I started the drugs on Tuesday after a visit and they took a load of bloods etc.
I received a phone call tonight to say that my billirubin has shot up from 29 to 44 and if it goes to 45 then I will have to stop the trial
My billirubin has always been good at around 21 since I was diagnosed 18 months ago but in the past 2 months it gone from 26to 29 to 44
I have another fibre scan next Friday