PBC Foundation
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Esophageal Lesion

Hello guys. I know this may not be the place to post this, but I don't know anywhere else to go. I had an Upper GI endoscopy yesterday to look for Varacies and to have a biopsy of my small bowel because of some anemia I have had. All of that was good, but they ran across a "submucosal lesion" on the distal area of my esophagus. My doctor didn't seem overly concerned to my family (I was still under and didn't get a chance to talk to him), but after doing research I found that 99% of tumors that are found in the esophagus are cancer! However, I will say that the reason behind that is that most people don't have an EGD like that until they are having issues and that these type of lesions are incidental findings on a test like mine. I have a photo of it and it looks just like lump under smooth normal tissue (which is what they say a Lieomyoma or benign lump) is like. Of course I was online last night like crazy and it scared me to death. That type of cancer is very very rough and even found early is bad news. Anyone here had one of these? Are they as rare as they say? I don't have any other symptoms except my normal GERD. The size was about 2-3 CM. I guess I'm just scared and I can't see my doctor for a couple of weeks because he is going to be out of the country. I am supposed to get a call from the nurse on Monday, but I don't know if she can answer my questions. All the places online I look for are cancer sites, and I am scared to go on those. I am really trying not to worry, but with the PBC and the fact that I had Thyroid Cancer, I'm just really scared.

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Try not to worry easier said than dine my cousin had scope done last July and they told him right away it didn’t look good he had a tumour the full length of his gullet anyway to cut it short had his treatment then op all removed he been told everything good and he’s on the road to a full recovery

Just a point that they would recognise something sinister

I’m sure you will be fine

Take care and get plenty rest

Hoping all is good news that you await 🤞

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Thanks wild geese. I appreciate your response. I keep telling myself that if this was super sinister they would have said something or urged me to get tested right away. The scope wasn’t terribly pleasant. I don’t remember anything but they said I struggled a lot and now I’m sore today. They also could hardly get a vein so I have some serious bruises. I would be less worried if every page I went to didn’t say the benign tumors are so rare. Of course they said PBC was rare too. Go figure right?

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Yea it’s normal to be worried I am in the same boat only it’s about my mouth I have to have biopsy still waiting on appointment. I also had scope 10 years ago not very nice but I didn’t get knocked out my findings hiatus hernia. The internet has been the biggest curse out upon us all very scary crap I seem to be reading all the time

Need to find a new hobby 🤔

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Lol. Yes! I have a hiatus hernia too. Mouth stuff is equally scary.

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I am sorry it’s a worry for you I know but try not to look on to many web sites and wait for your Doc to return or ask to go see another please god all will be fine sending you a hug and prayer 🙏❤️

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Don’t worry about it but definitely need to keep an eye on it, do not just ignore it many people ignore their condition and it get worse with time but I heard and read that GERD cause lesions in the esophagus and with time can turn into cancer unfortunately you need to control your GERD as much as you can and try to avoid food that causes you GERD I had acid reflux all the time and I didn’t know why most of my life had acid reflux and just noticed the reason why and it’s because all my life I’ve been having high liver enzymes didn’t know liver can give you all kinds of problem such digestive and also skin problems too my skin always looked dried scaly sometimes itchy but didn’t look moist and natural skin at all but Thank God my liver enzymes are going back to normal and before I didn’t know how to lower my enzymes but seems that DIET is super important for your body I’ve been eating tons of vegetables and fruits and avoiding salts sugars greasy junk food of course everybody love bad food it tastes better but you are doing good to your body eating healthy you can cheat on weekends I do cheat of course but I don’t eat like before cheating every day also supplements do help I’ve been taking liver detox and apple cider vinegar every day in the mornings and I’ve been lower my enzymes from 80,s to 40,s in a month fast improvement by just doing that and I feel awesome now healthy and energetic and no digestive problems no acid reflux but now I’ve to check on my liver because just got diagnosed with fatty liver for the same reason BAD DIET for most of my life but learned my lesson. But with pbc I know it’s more difficult and must raise your liver enzymes all the time and that is causing you digestive issues and GERD so it’s more difficult to handle I don’t know if pbc medicine helps Lower liver enzymes I’m not sure but even if it lowers your liver enzymes my advice would be eat healthy vegetables fruits lean proteins avoid fats greasy and junk food cheat 1 day in the weekends if you have to it’s ok but the rest of the week eat healthy try supplements natural ones avoid sugars and carbonated bevarages because that will make your GERD worse and that’s bad for esophagus and if you can’t talk to the doctor directly I would go somewhere else with your endoscopy results and see what they can tell you about it but if it’s a lump with definetly would ask the doctor for biopsy make sure it’s not cancer a lot of doctors send you home by telling you you are fine nothing would happen and you have in your mind I’m ok and will ignore that and will get worse with time and by the time you go back to the doctor doctor will be it’s too late now I’m sorry there’s is nothing we can do for you that’s what happened to my step father that just passed recently back in October he had trouble swallowing, cough all the time for years since I met him the first time 20 years ago he would cough all the time and trouble swallowing he would go to the doctor and tells them and doctor told him you are fine it’s a side effect of your diabetes medicine so he would go home and do nothing for years and deal with it by the time he came back it was too late they couldnt do anything about it and finally found a doctor that said no that’s not normal definitely you need a endoscopy to check and they found his cancer very advanced already so definetly you have to go after the doctors and make them check your situation and ask for biopsy because they just won’t since it’s not their body with that condition some just won’t care and unfortunately they are just sitting there for their pay check but not all of them are like that some will take care of you and check on you so if you see a doctor not paying attention to you and not caring about your condition and advising you, you need to go somewhere else. Oh I almost forgot to tell you that my step dad was a veteran from the Air Force in the US I don’t know if you are in the US or UK but if you served the arm forces you definitely need to see that ASAP. Take care of yourself my friend hope everything comes normal and it’s nothing bad, good luck.

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Hi NotorDJP

Sorry to read that you have this worry and it is difficult to put such a question mark to the back of your mind but may I suggest that you wait for the nurse to call on Monday to see if she can settle your mind until the doctor returns. If your doctor was not overly concerned when he/she spoke to your family then this surely is good news. If cancer was suspected would they have taken a biopsy? May I suggest that you take the time between now and when you speak to either the nurse or the doctor to write a list of your concerns and previous medical history so that you can concentrate on the main topic whilst you have the consultation.

I sincerely hope that the doctor can soon put your mind at rest.

let us know what happens

best wishes

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Hi notorgp

I had a endoscopy 3 years ago for my pbc and when they done it they took some biopsy at the same time so if they suspected anything surely they would have done it then when the scope was already down. So if I was you I would not worry and try not to stress

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Whether it is now cancer or not, if it were me, I would immediately go on an Alkaline diet. I would also start taking a supplement that really fights cancer. My husband had a foot of his colon removed due to a small precancerous polyp found embedded in his colon. In order to prevent the return of the malignant cells, he is on maintenance taking 4 capsules of IP-6 Gold (Dr. Shamsuddin's) a day, and always will. Only I would start with two scoops of the powder, one in the am and one in the pm, fifteen minutes b4 meals. Each scoop equals 8 capsules, so you would get more benefit. (We buy it on Amazon.com.) Even if it proves to be malignant and you have chemo or radiation, this supplement will help immeasurably. I was told about this by a woman who had cured her and a friend's breast cancer. Read Dr. Shamsuddin's book, Google IP-6 Gold, read all you can and make your own decision, but if you should try it, do not buy an el-cheapo brand. It will not work. My brother didn't listen to me and even though they were juicing all of the time and doing everything right, it spread from his throat to his bones and he didn't last long. And above all, avoid anything with sugar in it, because cancer thrives on sugar. Also avoid anything with High Fructose Corn Syrup in, like sodas. IP-6 Gold turns bad cells into good cells and that is a proven fact. You've got an early start, go for it. Best Wishes.

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