Just wanted to drop a line to let everyone know Im still kicking. My labs have been as close to normal range as they've ever been, thanks to the Ocaliva. Still having the monthly bloods ran. Im seeing a new rheumatologist at the end of the month to try to get the diagnosis of fibromyalgia in writing. Im being treated for it, just had to complete the numerous tests of what "it could" be. It seems that the only way to get the diagnosis is to rule out everything else it could possibly be & yes I've been the human pin cushion & test dummy for all of it. It's the only thing that could be causing such pain from head to toe. Happy that the Amitriptylin is helping. I take 100mg before bed. I pray all have been well, & I think of everyone often.
Stage 4 pbc, F4 cirrhosis, grade 2 varicies, among other issues.