Many medical conditions

[Evaibrahim60]

I wonder if my body is rejecting most of my medications. I have on and off skin rashes for more than two years now. Ursofalk is my main suspension that is responsible for it. I had to stop Ursofalk without my doctor advice! Anyone else has this problem?

[Angel_b]

Were you having other side effects as well as the rashes? I would double check with your doctor first as it may not be related.

I’ve been having trouble with a rash across my cheeks. It’s started to look like I’ve got blusher on even though I’m normally very pale so it’s a first for me to have any colour on my face (other than makeup). I’ve no idea what it is but urso appears to be working so sticking with it.

[gwillistexas in reply to Angel_b]

Rosacea can make your cheeks red. I have it but have had for many years. Nothing to do with PBC or meds.

[gwillistexas in reply to Angel_b]

Research Roseaca & read the Mayo Clinic link.

[Angel_b in reply to gwillistexas]

Thanks gwillstexas. I’ll have a look. I didn’t think it was to do with pbc. Do you use any particular foundation to cover it up? My usual one doesn’t always do the trick.

[gwillistexas in reply to Angel_b]

No, I just have to easy with my blush. I think I read years ago that fair skin people are more likely to have it. Don’t know if that’s so. I didn’t read the full article on Mayosl link but I think it will explain very well.

[gwillistexas in reply to Angel_b]

I don’t have bumps, just red. One of my uncles on mom’s side has it & I think my mom had a little. Some people’s nose gets red😟

[Evaibrahim60 in reply to gwillistexas]

Thanks but it’s not my cheeks and my rashes go alovcover my whole body.tries all cortisone creams but didn’t work

[gwillistexas in reply to Evaibrahim60]

Sorry, your post said it is across your cheeks.

[Evaibrahim60 in reply to gwillistexas]

Thanks but I believe you have read someone else advice to me in which she mentioned her own experience but not mine.

[gwillistexas in reply to Evaibrahim60]

Yes, sorry I replied to wrong person. Should have been to Angel_b

[donna01]

Do not take any other meds with Urso. I believe you're supposed to take them 2 to 3 hours apart.

[Evaibrahim60 in reply to donna01]

Thanks Donna I believe that is true because I used to rake two 250 capsules in the morning and two at night. I managed to stay two hours between them and my other medications and was good for a while. After that it was changed to two 500 tablets, then rashes was unbearable so I stoped them without seeking advice. Our doctors were in Christmas holidays! Thanks but three hours going to be difficult because there is two many of them and very hard to start my day like that.

[77706170]

Hi,I would see your gp and take it from there,and continue taking your urso as you need it to slow the proccess of pbc,it's so frustrating,good luck 😊

[Evaibrahim60 in reply to 77706170]

Thanks I will

[GrittyReads]

See your Doc and insist on some investigation into the cause of the rashes.

However, don't stop taking the Urso. It is the main treatment for PBC, apart from meds for non-responders to Urso (and even those meds have to be taken with the Urso ). Urso slows the progress of PBC, and without it your liver will be attacked, more and more, by the PBC.

It is only because of Urso that PBC has stopped being seen as such a dangerous condition.

Apologies for preaching, but it is never advisable to stop any medication without first (or at least simultaneously) seeing your Medic.

Take care,

Gritty.

[Evaibrahim60 in reply to GrittyReads]

Thanks very much GrittyReads but I fed up two years is a very long time and couldn’t take it any longer. Soon I I’ll see my GP and look on to it thanks

[gwillistexas in reply to GrittyReads]

Ocaliva can be taken alone for people who can’t tolerate Urso

[gwillistexas in reply to GrittyReads]

Ocaliva was formulated to help those who can’t take Urso & those who need something extra. European countries had a high mortality rate among people with PBC who could not take Urso & were left with nothing. From what I’ve read, that was one of the main reasons Intercept Pharmaceuticals got busy with an alternative.

[Evaibrahim60 in reply to gwillistexas]

Thanks gwillistexas