Bullous Blisters: Have any of you developed... - PBC Foundation

PBC Foundation

9,444 members8,201 posts

Bullous Blisters

GhostHunter profile image
10 Replies

Have any of you developed Bullous Pemphigoid with PBC? I have had 3 lesions develop in my groin area... the first was a larger lesion with clear fluid in it about the size of a quarter... then I had 2 more smaller lesions develop shortly following about the size of a dime, however they were red with blood mixed in with the clear liquid. I have never had anything like this before and have not had any since and that was a few months ago. I was not sure of what they were so I popped them with a straight pin and put antibiotic ointment on them and they immediately healed. Then I started to google these lesions and came to realize they look like Bullous blisters. Now I realize I need to show these to the doctor, except it takes me months to get in to see the rheumatologist. Are these normal with PBC?

Written by
GhostHunter profile image
GhostHunter
To view profiles and participate in discussions please or .
Read more about...
10 Replies
lennie9215 profile image
lennie9215

I dont know if its the same thing but i suffer from Hydradenitis.. Causes groups of abscesses to form anywhere there are sweat glands.. I was once on long term antibiotics for four years just to keep them at bay .. Now only get them occasionally.. But excruciating pain until they burst and then full of pus and blood... You need to take close -up photos of them to take with you to your appointment so they can see the extent. Good luck

GhostHunter profile image
GhostHunter in reply to lennie9215

I looked this up and looked at some of the images and I have a couple of those also... actually they are not the same as one looks like a pimple that is deep below the surface of the skin and the other is a blister that is at the surface of the skin... both are painful... good idea to take pics... Thanks 😊

GhostHunter profile image
GhostHunter in reply to lennie9215

What type of doctor diagnosed this for you? Was it a Dermatologist or a Rheumatologist?

Sandymh profile image
Sandymh

Hi Ghosthunter. Thankfully I haven't had Bullous Pemphigoid, but my poor Dad had it severely and was in hopital with it for 10 weeks 11/12 years ago. I believe it is also an autoimmune problem but not connected to PBC. Hopefully yours was only a mild case. Stay well.

GhostHunter profile image
GhostHunter in reply to Sandymh

Thats what Im afraid of... some of the pics on the internet showing people with severe cases look terrifying 😟

Sandymh profile image
Sandymh in reply to GhostHunter

Yes its frightening when you see pictures of how bad it can be. Do you still have them? If so it might be worth seeing your Dr who may need to refer you to a Dermatologist. Let us know how you get on. Fingers crossed for you x

Sandymh profile image
Sandymh

Apparently it can be triggered by certain medications altough the article doesn't say which ones.

GhostHunter profile image
GhostHunter in reply to Sandymh

Good to know!

mamma261 profile image
mamma261

just a thought but could they be boils? I have had those and they are painful

GhostHunter profile image
GhostHunter in reply to mamma261

Well boils are deeper... these are on the surface separating the top layer of skin, the epidermis, from the dermis layer just below it, and it fills up with a clear liquid... just like when you are wearing a new pair of shoes that gives you a blister. Although some blisters may have some blood mixed in making them look red. Now Lennie1250 was saying in a “Reply” above that they suffer from Hydradenitis which sounds more like what you are talking about, and I do have a few of those also at the top part of my inner thighs... This is all new to me and I will be meeting with my Reumatologist tomorrow so we shall see what she thinks.

Not what you're looking for?

You may also like...

Why would my Alk Phos go up after just starting urso?

Hi All, I have a question and wondered if anyone had an answer to if they had a similar...

Weight Gain and Urso

I was wondering... Did any of you gain weight after starting on Urso? I feel like since I started...

Cramps

I have PBC and am in 70s. Does anyone else have terrible muscle spasms, cramps in legs and hands?...

MRI with/without contrast anyone?

Hello friends I hope you’re doing well! I’m booked to have a liver MRI ‘with contrast’ which I’m...

early retirement due to ill health

hi I’am just wondering if anyone has retired early due to the extreme fatigue and brain fog...