Health Records On A Flash Drive: At the time... - PBC Foundation

PBC Foundation

9,480 members8,349 posts

Health Records On A Flash Drive

GhostHunter profile image
10 Replies

At the time that all of this started in May 2016, I did not even have a Primary Care Physician as I was rarely ever sick, and I had not had one in over a decade. However, gaining 40 lbs. in 3 months last year and having an entire laundry list of symptoms which would appear shortly thereafter, that would soon change.

I found a Primary Care Physician who diagnosed me with Hypothyroidism, then proceeded to refer me out to a:

Cardiologist for a High Blood Pressure, Heart Murmur and Palpitations

Pulmonologist for Asthma, Allergies, and other Breathing Issues

Gynecologist for Mammogram, Yearly Pap, Incontinence, and Uterine Fibroid Tumors

Gastroenterologist for Elevated Liver Enzymes, Pain in my Stomach, Heartburn, and Pain on my Right Side

Neurologist for Daily Migraines or Headaches, Dizziness, Narcoleptic Episodes, Insomnia, Fatigue, Raw Nerve Endings, and Ringing in my Ears

Rheumatologist for Severe Joint Pain, Back Pain, Musculoskeletal Pain, and Issues with Walking

From there between the Gastroenterologist and Rheumatologist I would be diagnosed with PBC and would end up being referred out to a Transplant Hepatologist and Transplant Surgeon.

I learned very quickly in the beginning, however, that even though these doctors would refer you out they did not transfer your records or any testing results that had already been completed, and I was being asked to pay for duplicate testing which is quite expensive and not to mention time consuming. So I bought a Flash Drive, a 128 Gig Flash Drive that had enough memory on it to carry ALL of my Medical Records, MRI and Ultrasound Images, X-Rays, Lab Results, and Summary Pages from every one of my doctors visits... the doctors loved me for the convenience and it saved me a lot of time and money that I would have spent in duplicate testing.

So I guess the moral to this story is be prepared and get a Flash Drive.

Just FYI... Even though I may have PBC I have managed to lose 25 of those 40 pounds that I had gained and I am still slowly losing weight so not all is bleak. 😊

Written by
GhostHunter profile image
GhostHunter
To view profiles and participate in discussions please or .
10 Replies

Good job on the weight loss! Very impressed with your records management.

GhostHunter profile image
GhostHunter in reply to

Thank you... just thought I would share as I am sure I am not the only one to encounter this situation.

in reply toGhostHunter

Yes, the US can use a overhaul of its medical system from coverage, cost to systemic management. This is why healthcare costs so much in this country & the results still are not as good vs those in lower spending countries. But that is not a discussion for this site. So I will get off my soapbox. 😉

gwillistexas profile image
gwillistexas in reply to

🤔🤷‍♀️🤫🤗

Ballymahon2 profile image
Ballymahon2

My primary care doctor sent all my scan results copies of blood tests etc to the specialist which is good medical practice i live in ireland

gwillistexas profile image
gwillistexas in reply toBallymahon2

My Internist sent all mine to GI. Didn’t have to pay to do labs again, thank goodness.

Ballymahon2 profile image
Ballymahon2

Thats the way it should be

kristieerhodes profile image
kristieerhodes

Being a veteran, I can download my records at any time. I try to do it at least every 3 months after I have had a checkup or something.

JaneIng profile image
JaneIng

Great idea. I bring my lab spreadsheets to my doctors and they love it. The spreadsheet has all the lab histories in a chronological order so they can see the trend. The lab results are grouped by functions including CBC, Metabolic panel, liver function, renal function, lipids, thyroid function, pancreatic enzyme, vitamin and mineral level.

I originally did this for myself to track the progress with all the meds/supplements I am taking. It helped me with the questions to ask the doctors. My doctors were impressed and seem to take me more seriously.

GhostHunter profile image
GhostHunter in reply toJaneIng

I love that... great idea!

Not what you're looking for?

You may also like...

Gastroenterologist or Hepatologist

Could anyone explain the difference between a Gastroenterologist and a Hepatologist and which one I...
Tracy-L profile image

Liver Hot Flash?

I'm 50 and for the last 10 years I've been getting what I called "tropical breezes" lol Not a Hot...
tonia66 profile image

PBC Name Change notice released via PBCers.org (* Partially repetitive to what's been posted here and with a few diifferent details)

PBCers Please Read - PBC Name Change Sun Apr 27, 2014 2:41 am (PDT) . Posted by: pbcers Hi...
JennerLayne profile image

Stages of PBC-Prognosis-Next Steps?

My wife has had Fibromyalgia, Sjogren's and Reynauds for about 12 years. Apparently she...

Help needed: health, biopsy and lab contradict

Help lab, health and biopsy overlapping, Dear all in 2013 I was diagnosed PBC based on positive...

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.