Hi. Was thought to have PBC back in 2005 but nobody followed it up. After having further regular blood tests a couple of years back PBC was immediately diagnosed due to elevated liver function tests and was referred to a specialist. My original specialist saw me every 3 months did annual MRI and Bone Mass scans. MRI showed then an enlarged liver but no scarring and the bone mass was lower than average. I am now being seen by another specialist who us very dismissive of the condition. I take Urso 750mg at night and even though I have told him that a family member was diagnosed, had a transplant and has now passed away, he says that I just have a condition which I just have to get on with. He has done no further scans and only sees me now every 6 months and concentrates solely on my blood test results and my weight. I have cried and told him that I am totally consumed by fatigue, even though I try to keep active and at present work part time, and that at times the itching can be unbearable, his answer was to go and buy some antihistamine. I am sure that I should be receiving a little more monitoring, as I was told by the previous consultant that I would always need blood tests every 3 months, would need regular scans and a liver biopsy all of which my new consultant say are unnecessary. I have recently had some blood tests completed at my doctors which showed elevated inflammatory markers which they think may lead me to having another auto immune disorder such as rheumatoid arthritis which I am waiting specialist tests from the blood department. Is the treatment I am receiving at the moment acceptable or should I request more. Can someone help please. Thanks x
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