I'm new here and have been busy reading posts & thought I'd share some of my concerns too. I was diagnosed with pbc July 2015. In August it was confirmed that I have cirrhosis of the liver. Generally I've not been too bad apart from crazy itching & tiredness but this year hasn't been so great. Ascites started in January & is becoming a regular occurrence. The melena started in May & I've had several episodes resulting in a low blood count (54 in May, 67 this week) which leaves me quite weak & dizzy so now my gi is talking about a shunt but I'm worried about complications with surgery as well as the after effects (encephalopathy scares me rigid!) Does anyone have a similar experience to share?
Thanks for listening.