I have been diagnosed with PBC recently and am terrified I am going to die. I am very emotional and cry when ever I talk about it.
I don't understand the blood test results but know they are not good because of the reference range.
Alkaline Phosphatase * 177
Aspartame Transaminease * 69
Alanine Transaminase * 92
GGT * 368 (really worried about this result)
Love to know how I can reduce these levels PLEASE HELP!
Since diagnosis I have read a lot of posts from people with PBC but find it hard to get information regarding diet. Some say regular Coffee is good for the liver, others say don't drink it at all. I can drink dandelion tea and coffee that I thought might be good but have read it's not good if you have PBC.
I suffer from extreme bloating and spasm like pain when I eat or drink, worse in the evenings.
I Am trying to drink 2 litres of water a day but struggle with still water and I don't know if I can drink sparkling.
I suffer with fatigue so as yet to increase my exercise regime other than walking my dog.
I know there are people with debilitating diseases a lot worse than mine but I would like to improve my health to live as normal life as I can.
I hope I don't sound like I am wingeing. I am 60 years old with a lovely husband and 2 amazing married sons and have my first grandchild on the way.
Any advice I will be really grateful x