Concerned: I was diagnosed with PBC in 201... - PBC Foundation

PBC Foundation

9,383 members7,980 posts

Concerned

Rosairobles profile image
9 Replies

I was diagnosed with PBC in 2010, my feet, hands and stomach area feel swollen always at the ending of the day. i workout 4x a week and im very active, even though im constantly tired.... is there anything i may be doing wrong, or is it the side effect of Urso, been on it for 6 years ?? Anyone have that same problem with swelling? If so any suggestions that may help are appreciated.

Written by
Rosairobles profile image
Rosairobles
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Lauralee851 profile image
Lauralee851

Hi,

I'm not fully diagnosed yet but I get the swelling too. It's worst in my right wrist/hand/fingers so I'm wearing a splint and getting Physio now. It's also very painful so I'm going to ask if a steroid injection might help.

X

Twinkle26 profile image
Twinkle26 in reply to Lauralee851

Hi lauralee851

I'm not sure if it's the same but I had this problem with my thumb and wrist, had the splint for total rest them physio, it's a lot better now although weaker than it used to be, yes it was painfull at times and I couldn't even wash up properly couldn't hold plates etc.

I just wanted to say I had steroid injections to my hips and yes it helped eventually but not for long, it's painful to have and not worth it for the time you have the pain free weeks.

Hope this helps.

Lauralee851 profile image
Lauralee851 in reply to Twinkle26

Hi, thanks for the reply. It's just so hard when you get desperate isn't it. Sometimes it's painful picking my baby up and that's quite upsetting. I just want some relief. X

Twinkle26 profile image
Twinkle26

We all react to pain differently so do what you need for your needs, good luck xx

Rosairobles profile image
Rosairobles

Is there anything to help the swelling? Perhaps diet? Thanks!

gardner646 profile image
gardner646

Hi Rosairobles, It's probably best to get yourself checked for Osteoarthritis which is related to PBC. I don't think it's the Urso causing your symptoms but best to be sure. Well done, keeping active. Take care of yourself.

gardner646 profile image
gardner646

Sorry, I should add I have found that anti-inflammatories (Ibuprofen) help me most. You should tell your GP that you're taking them. Cheers

Rosairobles profile image
Rosairobles

Thanks gardner646 for you response, i will check on that......

GrittyReads profile image
GrittyReads

Hi Rosairobles,

Do you mean they just feel swollen and painful - like arthritis/rheumatism?

Or are your extremities - especially feet and ankles - actually swollen and puffy? If it's the latter you should check with the GP, as it can be typical of lots of things.

Take care.

You may also like...

Concerned with possibility of PBC

and I'm terribly concerned with the possibility of PBC. I feel I need a second opinion but since...

Very concerned

time I had lots of scratching odema a very swollen stomach and terrible mood swings and I'm sad to...

Newly diagnosed and concerned about pain

I am newly diagnosed with PBC (diagnosed December 2015) I've started Urso treatment, and my blood...

Update: Thyroid cancer surgery and concerns due to PBC

with my gastroenterologist and my gp due to the PBC and the anesthesia and possible bleeding risk....

Concerns about liver biopsy

seen my consultant recently, and even though my dosage of Urso had been increased to just about...