I've heard mention of a DVD on this site for those of us with PBC. I live in Ontario, Canada, was diagnosed in 2013 but have received very little information specific to PBC from the Canadian Liver Foundstion and definitely no DVD. Would it be possible to receive one of the PBC DVDs in Canada, please. I am si pleased to have found this site, as I've been feeling quite alone dealing with PBC. It seems most healthy people will only recognize that you really are ill if you've lost your hair or in hospital hooked to tubes and wires.
I am on URSO however didn't start right after confirmation through biopsy as my mom was diagnosed with Cancer at the same time as my diagnosis. I was afraid any bad side affects would affect my ability to be at the hospital daily to help care fir my mom. After she passed, I still put off starting URSO since I didn't feel to bad. Within a few months I was in a terrible state and smartened up. I really noticed a remarkable difference with absolutely no side effects.
If you've been prescribed URSO, start it right away! Good luck and enjoy life to the very best of your abilities.