Support NE Scotland

I have been researching all information I can for my sister who was diagnosed 18 months ago. She is struggling along and feeling quite isolated as doesn't have a PC to reach out online. She really wishes she could talk directly to someone in her area especially now been told they don't think the Urso doing its job for her. She doesn't drive and the chronic fatigue limits ability to travel. Im worried as I have a health condition of my own and know how lack of support and isolation can affect mental health.

4 Replies

  • Good morning courtyquine,

    I am going to send you a private message regarding this.

    Best wishes

    PBC Foundation

  • Hi Coutryquine, I'm sorry to hear about your sister. You are such a good sister to be looking out for her! I know this group online has been a great source of information and support for me. It must be very difficult to navigate this diagnosis without it.

    Do let her know that we are thinking about her. There's a lot of great information that can be accessed through the PBC Foundation. Let us know if we can be of any help!

  • What a lovely reply. I had response from the Foundation so encouraging sis to pick up the phone and make the call. I have had my own issues with health and know acceptance is a hard stage to get to usually after running oneself into the ground. Know all about feeling guilty for needing help and not wanting to feel useless. So can see trying to help her avoid my pitfalls - plus stubborness runs in the family!

  • You're a good sister and I'm sure that you're appreciated. My sister lives 350 miles away but still tries to help me. It's so awful to feel isolated. I live in Scotland, in West Lothian. Thinking of you.

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