Hi have been quite well with my PBC diagnosed 4 years ago but like a lot of us on here may have had it years and years before finally getting answers. I am under QE now and go every 3 months usual bloods and scans in the past have had camera down finding grade A varices mild Hypertensive on meds and under control MRI Scan showing slightly enlarged Liver and Spleen and Cirrhosis also low Platelet count all other bloods not far from normal Bilirubin normal and still feeling quite well . I have read that a lot on here have much the same going on but after seeing Consultant last week he mentioned looking at all my results put together was looking at 3 years before Transplant time SHOCK my God just went totally blank my question being has any one been told how long it may be before they talk Transplant to you. I understood that PBC as a mind of its own and can affect every one in so many ways all at different times as far a how fast or slow progression takes so how would he be able to put a time on how long for Transplant. I take 1,000 mg Urso and latest scan on Mon was showing no change in other words no worse than last Scan I know we are never going to be told PBC is getting better because no cure but no change must be a good sign surely . So any one out there still going on pretty well after being told when your Transplant date might be can just remember catching him say better to get it done why you are strong than leaving it till things deteriorate perhaps he is right but still how does he know that will be 3 years . Take Care all XX
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