I was told 6 weeks ago I have pbc not a clue what it was and the doctor told me nothing only that he could give me a biopsy but that could kill me and sent me of with some tablet. If it wasn't for The PBC Foundation I honestly wouldn't no where I would be now. I go back in 6 months but this time I will be asking the questions. I have 1 leaflet that I take around with me. That has been to doctors and hospital appointments trying to make people understand what we are going through.