headpain

hi im new here I have muscular dystrophy trygenial neuralgia cluster headaches real pain pain is a warning that should not be ignored nor disbelieved, to be pain free would be a luxury.

[Anjila]

Sorry to hear of your discomfort, I've had headaches for a few months and doctor treated as migraine, I've had migraine as a youngster and I know the type of pain that is, it's not migraine I have, I also get facial pain, I've just been reading other comments and realise that it could all be connected to fibromyalgia I'm going to rheumatologist so will raise this with her, I feel it's time I took action and looked into my symptoms in more detail.

Keep positive and I send you good thoughts

Anji

[Hidden in reply to Anjila]

sorry to hear about your pain aswell, ive been ill so long I am quite knowleged on the medical side beihg for so long, it sounds like tmj possibly trigenial neuralgia or clusterheadaches also read about gcp giant cell artiary kind regards

[Hidden in reply to Anjila]

I also think its an neurologist you need to see and maybe a cat scan

[tinypixie]

Sorry to hear about your pain. I started hypnotherapy and although it can't address the cause of the pain, I found it very helpful. Also, I had trigeminal neuralgia for three years but it has really calmed down now. I'm sure there's hope for you. Best wishes!

[Hidden in reply to tinypixie]

yes that sounds good you have to try everything and keep faith the only way to get through is amblance or passing off time put know one should suffer in pain and everyone remember the pain ladder is a persons human right.

[teddybear7]

You have some awful conditions honey. So sorry. Do you have PBC . I'm thinking of links & my own pain.?

[Hidden in reply to teddybear7]

what is pbc and thanks yeah pain horrid what have u got and are you getting anywhere pain relieve diagnoses extra is so nice to have an hour or so pain free is your pain bad?

[teddybear7 in reply to Hidden]

This is a forum for people with PBC. You may get more help with your pain if you tried another group that was specific to your medical condition. I mean this in the nicest way & not trying to be awful just helpful.x

[Hidden in reply to teddybear7]

ow ok I see am a newbee so will get used to using this site, thanks so much for advise all the best many thanks

[Hidden in reply to teddybear7]

what sort of meds are you on you have to research sometimes they don't always tell you about all the pain killers and don't know if you know this but doctors get paid to promote certain meds and they don't always have your best interest at heart