Has anyone else with liver issues experienced Trigger Finger? (When I wake in morning I have 2 middle fingers curled up and am unable to straighten them without using my other hand to straighten them, the straightening causes pain! )
As I read about it autoimmune
issues are mentioned and liver / kidney s are mentioned too. So I wonder if other liver patients have experienced this?
I am 10 months post transplant, have Iscemic Cholangiopathy ( failing bile ducts) with a second transplant expected (hoped for)
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HiYa, all my fingers are curled up in the morning and it takes quite a while for me to get my fingers moving, sometimes even my thumbs are hurting as well, I just put it down to normal PBC joint pain for me. everything else hurts as well so I didn't see any difference in pain anywhere else, but when you think about it it's a bit strange, i am going to the pain clinic very soon, I will ask, they are aslo sending me to Wrecsam for a fibroscan, I thought ( hoped ) Glan clwyd would of had one.
Hiya Charlie, no I am under a gastro and Llandudno hospital, i am a feeling I am the only patient, he seems a bit more up to speed on it this time i saw him, I have only seen this one twice, the first time he did not seem interested, but this time i went with a list all typed out and asked questions and mostly got the right answers, he still won't admit that PBC causes pain even though the rheumatologist told him I have chronic pain that is not fibromyalgia.
I did mention to him that I would of liked to see prof david Jones where he not so far away.
You need to see another consultant IMO PBC is very specialised, but I fear there are no consultants who have much or any experience. Llandudno Hospital is not a major hospital, the gastro people there (unless you are exceedingly lucky) will have no or little understanding of PBC. I would ask to be allowed to go to a transplant specialist hospital (and Freeman is best for PBC) for at least one appointment, you could even try approaching Freeman your self, and I give you permission to mention my name -(kenneth George Charles Hobson) they were very surprised when we arrived with 2 bits of paper, they usually have a thick file on tyhe patient.... it is worth a try, ask for the liver transplant co-ordinator, or registrar on call - it sounds like your consultant is not up to speed, and this is no surprise, PBC being unusual.
I will see what my fibroscan says first and if i need to I will ask to go to the freeman.
I went to help with tea tonight and i bent to get a pan, i know the Liver does not cause pain per say but I almost passed out with a pain straight across where my liver is, I was quite worried at the time. Just hoping it was wind :o))))
About your hands I tend the curl both hands up into little fists while i am asleep.
Anyway thanks Charlie will get back to you when I go for the scan, Take care XX
I had similar to this when I was pregnant (not relevant to you I know!) and it went after about 6 weeks after the birth , my GP said it was carpal tunnel syndrome. I never thought It could be connected to PBC, it has not come back but sometimes my fingers feel a bit stiff, I'll have to keep an eye on it. Sorry I am not really helping here
my main interest was is trigger finger associated with PBC ?
From the number of replies from people with both conditions, I think it is safe to say, if you suffer PBC it is no surprise you could have trigger finger! I will now set off to get splints before it gets any worse.... Thanks to all for replies.
In some cases such as my family it is genetic and I have been told but not researched it that it indicates that your ancestors were Vikings.
It is not linked to PBC but many many people do have it. It is a lot more common than PBC . Hope the above link helps you. In our area the GP refers you to an orthopaedic assessment clinic and depending on the severity there are a number of routes.
I have had surgery on both my thumbs for Trigger thumbs. My orthopedic surgeon could not believe that I was not diabetic because he said that diabetics usually get trigger thumbs.
I had surgery on my right thumb for Trigger thumb. I never even thought it was related PBC. The surgery wasn't bad. If it persist I would have the surgery. They should be able to do both fingers at once since they are on the same hand. I wouldn't do both hands at once. You need one for bathroom duties. lol. Seriously though. I hope this helps.
I am not saying PBC and Trigger Finger are related! I sense there are a few trigger finger sufferers amongst the PBC community, and thus do wonder if there is a connection? still do! anyway, not the worst thing to happen, onwards and upwards!
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