PBC Foundation
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hi i suffer with very bad bloating! was hoping to find out if pbc can cause this?????

hi every1, hope ur all well, i have a queastion for you, i have really bad bloating (where i look lke im 7 months pregnant) i am on alot of medication due to a severe back problem, does any1 else suffer wiv this? its really starting to get me down :( i was only diagnosed early this year & my consultant is a bit bulshy so dont want to ask him anything unless i reaslly have to.

your answers would be very much appreciated.many thanks

susie :)

4 Replies

Hi susielou, first may I say if your consultant is as you say bolshy I would perhaps see if there is another consultant you could see. As for the bloating I have same problem. When first diagnosed March 2012 I lost weight, but since I started taking medication, urso and steroids (I have AIH/PBC overlap) in particular I started with the bloating. I wonder did you get in touch with PBC foundation. They have lots of information and booklets that explain things. British Liver trust also has lots of information available. I read in one of the booklets that digestive issues including bloating are symptoms related to PBC. Not everyone is the same though.

Have a look through the posts on this site, there is so much help and information available, we all have different symptoms but we are all in the same boat.



I'm sorry your not feeling well. I too have a lot of pain and take Vicodin, which in turn makes me constipated and bloated. I found that drinking lots of water 8 (8 oz) glasses plus a probiotic help a lot. It didn't go away, but is tolerable. I feel bad that you are not comfortable asking your consultant questions. Remember you have hired him/her to take care of you. If they give you crap or make you feel like your a whinny stupid person to dare ask questions they deem unimportant, then find a better consultant. This disease is serious and you need to be able to ask whatever questions you need. I don't think ANY question is stupid. Especially if it give you any sense of relief. We are here for you too. Good luck and feel better. Patty


The cholestryamine for the itching gave me this problem. I had to stop using it. Also I use the probiotic, acidophilus. It also prevents me from have a yeast over load.



Hello susielou, bloating is a definite factor for me. I am a newly diagnosed pbc (5wks ago)and the main reason I went to doctors was I am a long term sufferer of Ibs. My symptoms of bloating were very different to my Ibs which was a trigger for me. Went through all the test to be confirmed pbc. I am now patiently waiting for a biopsy. I wish u well and hope you get an understanding consultant who you feel you can talk to . Take care


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