The reason I ask is that I was told at my last appointment when I asked if I needed to go back on Urso( due to my Lft enymes being very elevated though Albumen normal and Bilirubin only slightly raised at 30) that even if I did go back on it, it may only slow down the progression by a year or two tops! I was told this quite abruptly and while I appreciate that on that particular day at the OPD it was extremely busy I was totally flabergasted and in shock as never in the 11yrs from I have been diagnosed have I ever been told that. Am now wondering if he meant that for me personally or for all people with PBC in general. I certainly do not want to go back on Urso as my itch is so much less and more controllable since coming off it last Aug than in the 12 yrs since I was diagnosed with just taking the Questran Light 2-4 sachets a day. This disease is so ironic in my experience you could feel like "crap" (excuse the expression) and have no changes in the bloods wheras now I feel relatively good and yet my bloods are not so good! Go figure confused.com! Any thoughts would be appreciated
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